Showing posts with label friends. Show all posts
Showing posts with label friends. Show all posts

Sunday, March 29, 2009

Words From A Friend Who Watched his Best Friend Die from Pancreatic Cancer

Reposted from Scott's original Post.

A Guest Blog by Frank Chiarella,
One of Scott's dearest friends, and certainly one of mine.
Always and Forever, Frank, I love you.
You offered and Gave Scott unconditional love and Friendship
from the time you met him until he died.

You also provided my Mom and I--
A feeling of peace and safety.  I am so sorry about the recent death of your father.

You hold a special place in my heart--
Always Have and always will.

Sheri



Tuesday, August 22, 2006
8.22.06, Guest Blog. Melancholy and Mystery of Family - A Salt Lake Journey by FGC

[Hey. Here's going to be a Guest Blog from Frank, from the Utah trip last week, a few days old but it's the process of digesting and the digest of processing that was required. Frank also gave it to me two days ago and the remainder is my process of putting off a bit, as is my wont. Today's Franky Scale is an 8, physically pretty good, emotionally very good, a visit from the Disenchanted Princess begins. Also, Mme X had a momentous day that I'm happy about and glad to share part of, so these things add up. Huge congrats to you X. Now, I'm just going to check some edits on the post and will be back with it shortly, tonight. I'll leave this up for most of tomorrow, and if I come with a post of substance I'll put it up at night. Peace.]

Guest Blog:

The Melancholy and Mystery of Family – A Salt Lake Journey.

Traveling across the country to visit a dying friend sucks. Never mind the crowds, crying babies, shoe removal and metal objects at the security points. It’s the anxiety of seeing your dying friend and the fact that you are fucking helpless to fix him. My visit with Mr. Jones was not my last precious moments with him but it crosses your mind. Is this the last time?

My visit with Mr. Jones and his family was bittersweet. When it comes to talking about families and the nuisances between all the players –well…. People in glasses houses, if you catch my drift. Three older sisters, a saint of a mother, a nonexistent father, partners, nephews, beautiful babies, the best fucking carrot cake I still think about, and the ubiquitous drama that exists between all families. A friend once told me spending time with families is like being around fish. After three days they start to stink. Amazingly,
It was five days and the fish remained edible.

We all cope with loss differently. I tend to cry a lot. I think about the living Scott and I have shared and put the impending death of my friend out of my mind until we started to talk about what to leave behind and executing a will. Then it hits you. That is living in the now, the harsh reality of losing a loved one, family or friend. It’s reality punching you in the Adam's apple, you can’t talk or even breathe…. So you just listen. Listen to your friend – Always.

The drama started before I even arrived at Sheri and Stepheni’s. The details are hard to grasp – almost unbelievable, and you wonder what the fuck was the person thinking. So I listened and listened more, digesting the events of earlier that day that I wasn’t around to see. A conflict of sorts between Mr. J and someone close to him. We all cope differently – Right?
Mr. Jones manned up and settled that one.

I spent hours with Sheri and Steph, and there was great pain in that too, the impending unbearable loss of a brother who may be put on a pedestal but I have to say… rightly so. I stood under a full moon with a grieving sister who no doubt loves her brother and we tried to make sense of the senseless.

I visited Stepheni at her office to steal her wheels and met her coworkers,
Who all knew Mr. Jones from this blog. The palpable concern and genuine emotion from all of them was there too; more coping skills and support from distantly related, somewhat anonymous blog readers, who were in the midst of a dying cyber celebrity.
Greetings and gratitude to you guys at the Data Center from Mr. McMahon,
(ask Steph to explain that one).

The big Sunday family get together was marred somewhat by the lack of some family not posting, showing up, on what will most likely be the last time you will all be together…at least with Scott in SLC. I can’t remember the excuse given for why “they” did not come, that is something they will have to live with.
Sue and Susan were fantastic hosts and coping skills were again ever present-- with good food, conversation, and stories; and for the few times when the harsh reality of Mr. Jones’s condition slipped in, I was aided with help from my “nurse” who made the name “Collins” proud.
To all Scott’s nieces and nephews you were huge to come and show your uncle how much you care. In the end it is your family that will always come through. After the party, Mr. J and I paid our respects to Daniel at his grave and he reflected on his own loss, losing Daniel. The mystery of his nephew’s life and death still haunts him. The sun began to fall and cast long shadows on the tombstones as we left, That moment will remain with me forever.

Finally, how will I ever forget looking into the eyes of a grieving mother struggling with the loss of her only son? Nadine, you will always be in my heart. If the miracle you want happens I will sign up with Mr. Smith. Your bran muffins and carrot cake are made with huge love, and as I walked by the pan of carrot cake and stole another fraction of your cake, each time I realized food is yet another coping program. It is also comforting, knowing it was made by you with love. Nadine, I love you for your honesty and admire your faith.
More importantly, thank you for giving me the pleasure of knowing your son.
I hope to one day share all your infinite wisdom with my own family, along with my many memories of your son.

Sheri and Steph* – thank you for your hospitality again – I love you both!
Mr. Jones….. I am always listening. NO pain please! Do what ever it takes….but please…no pain for you.

FGC

Posted by Mr. Jones at 10:33 PM



2 COMMENTS:

Slarry said...
Dear Mr. Frank:

I am a grieving sister and you, the loyal and ultimate ( grieving) friend. We were as one, under the full moon that night; our tears flowing freely, taking solace in each other’s company. Completely unified in the knowledge, that he, Mr. Jones, is unique in all the world. The thought of him not being available to learn, love and laugh with, the loss of Scott--- the most unbearable pain we could imagine. 

You are like my “other brother”--
such fine and similar characteristics; characteristics and gifts that Mr. Jones has always freely, unconditionally provided and offered me: feelings of safety, a sense of calm and stability, keeping me grounded and the warmth and comfort that can come, when one feels understood by a sibling and a loyal friend. I thank both you and Scott for that-- for years of making me feel understood and loved.

What a gift you are ... such joy, comfort and renewed strength you brought with you from New York, showering it on every one of us. For Steph and I, you truly are our favorite. Not only a term of endearment that we have always said concerning you; you are the real deal, our dear, dear friend, and for me personally, like a second brother. Thank you for that. We love you more than we can articulate, probably more than you know.

Your genuine attentiveness, concern and admiration towards our Mother, probably added years to her life. I want to thank you for that and more. Sometimes the one’s who deserve our admiration the most, the people who teach and love us unconditionally, get thanked less often. Thank you for appreciating and enjoying Scott’s Mom, my Mom, as we do. She is a Saint and does make the best Bran muffins. But you also scored a full pan of carrot cake as well. : ) That is huge, my friend.

Other than mine and Steph’s love and gratitude for you and how you have helped us through many emotional and difficult moments, I mostly want to thank you and acknowledge the great friendship you and Scott share. It is a thing of sheer beauty-- and helps this grieving sister, feel a little less anxious about my brother’s impending death. 

I try not to think about it-- try and stay present in the here and now, but the fact remains that my favorite person is suffering unimaginable pain and having his beautiful life, his beautiful mind cut far too short. This is where the senselessness comes, my trying to understand and believe that this is really happening. And it does bring with it questions about the meaning and purpose of life--- why Scott? Why a terminal cancer? He is the healthiest man I know. And especially, why my favorite person, the one I lean on and learn from the most? The one person in our family, other than our Mother, who has the most to offer this world.
I will never understand.

And to my brother: reading, hearing about and observing, at times, your level of discomfort, anguish and pain, is so harsh and unbearable. I hate the pain. I hate that you are suffering and that there is not one stinking thing I can do about it. I can’t fix it. But I am here and I can listen, always.

Thank you Mr. Frank for writing your third guest blog. For stepping up and having the courage to tell it like it is. The “no shows,” the absent and anonymous father--- but also, and most importantly, appreciating the greatness and unique impact that my brother has on others. Also, for the perfect example and a testament to true friendship. You are a class act, my friend. Selfless, and darn influential as well. You too, leaving your mark- imprints in the hearts of many.

You are huge Franky and we love you. Can’t wait to see you again.
This is not good-bye. My plan is to be wherever my brother is. So I will hook up with you there soon. Hopefully, there will be a hot tub for you to splash around in. I’ll try not to peek. : )

 Big, big love to my brother. And to Ms. X, I congratulate and celebrate you too.
Scott, you have some great and supportive friends. So loving, so loyal, so cool. But really, how could one not be drawn to you?
Don’t worry-- I won’t do the pedestal thing. It is just that I love and care for you so much and for so many reasons. You have been an unequalled gift in my life, equally as long. You remain so, and always and forever, will be my most precious. 


Thank you again, franky. And love you most and infinitely my brother.

 xo, Sheri


Give Gill, the Princess and Ted a hug for me.

8:28 AM, August 23, 2006
34DD said...
Wow! - it's hard to top that comment so I won't dare try. I'm just glad that Francis was able to write down his thoughts about the trip to see Mr. J - the stories have been spilling out all week. Thanks to S & S for taking such great care of my boy & your boy & to your mom who kept them well fed! Everyone needs a little comfort food now and then. 

Mr Jonsey - I'm psyched that yesterday was an 8. I hope today is an 11. No more pain. Please tell Miss K we said HEEEEYYYYY and give her a squeeze for me (wink wink :) oxoxoxo lot's of love and good thoughts from NY.


ADDENDUM: Sir Frank, thank you for this and many, many other acts of unconditional loveand Grace. Scott loved you so much- but you already know that. Please know that we do too. Hope this finds you well.  
Forever & Always, you truly are our FAVORITE! loves, Sheri and Steph*



* deleted. 03/28/09

Tuesday, May 20, 2008

Remembering Mr. Jones (Scott Swaner) photos

Mr. Professor Jones, hanging in his office at The University of Washington.





Scott in Korea with a friend



Sunday, December 23, 2007

BRIEF INDECISION revisited: July 22, 2006


This post is a reprise from the original from this same blog.

As the one year Anniversary of Scott's death came and went, December 20, 2007, a mere
two days ago, it prompted me to re-read some of his blog.
It brought back many memories, reflections, and the utter horror of this entire situation;
Scott's diagnosis, and his eventual death from pancreatic cancer.

There was so much, in the "in between."
The same could be said for "The Aftermath," the time, spaces, places, feelings, people, confusion
between the here and now.

One of Scott's dearest friends, a frequent and eloquent blogger, and a dear, dear friend
to many of us, lost her Mother to cancer, shortly after Scott died. A "double whammy" to be sure.
My family, Scott's family, lost our Mother a mere three weeks after Scott died.
These episodes and events, give one pause.
Cancer--- I'm sick of it. Death, I'm so tired of it interrupting so many peoples lives.
And yet, it is a part of life.

It is almost Christmas Day, a Holiday, a day of worship, joy, reflection, a traditional time of "family,"
for many people.
Whatever your belief system is, whatever you do on this particular day,
at the very least it is filled with feelings and memories-- both of families and friends.
A day of love and connection.

This day, is forever changed and altered.
I wish DZD comfort and peace. I wish franky, the same.
There are too many people to mention, and, this really isn't my blog or forum-
it's my brothers.
But I do wish you all, peace and comfort and joy.
And if Scott were here today, I know he would want to thank all of you
for loving and caring for him so completely, supporting him,
with such gracious selflessness. Me too.

I wish any and all who are struggling, suffering or filled with a sense of loss
or emptiness, any who are fighting for their lives, just as dear Scott did, not so long ago,
the determination to continue to fight and rage. Life is worth it.

There are better times ahead. And even when it doesn't feel like it,
you are not alone, we are not alone--
we have each other to lean on, when we allow it.

My best to all of you,

Sheri

PS I love and miss you Spot.

revisiting Scott's blog.
His post and the comments made, on July 22, 2006.


Do Not Go Gentle — Poetry & Cancer, Life & Death
Some thoughts about pancreatic cancer, pancreatica, metastatic cancer, dying young, untimely death, quality of life, then poetry or "a making, a creation" — & what can be left of it while coping with fear and grief and dumb fate; trying to make a life, with what seems like little left. Family & friends, love & loss. Comments are welcomed and encouraged, though word verification and moderation are required.
Saturday, July 22, 2006
7.22.06, Brief Indecision
Walked into the kitchen, which is still shaded out because of yesterday's heat — and what they say will come today as well, and took a left turn, walked about ten feet to the far wall where I stood facing the sink, coffee maker, coffee grinder, rice maker, dish rack. For a brief moment I thought about what Frank asked me once, or I thought rather the object of his question, at what point when you get up every morning do you think "Ah, fucking cancer"? Today I woke up and it was already woven into my thoughts from the left turn, the ten feet, the facing of the morning machines.

Cancer, cancer, schedule, calendar, how long, tasks, limited range of drugs, more cancer, less calendar . . . for a moment that's all I thought, not consciously but still that's what I woke up with. Then it hit me, "It's simple. Just make coffee. That is clearly the answer to everything." Just like in Home for the Holidays when Holly Hunter and Anne Bancroft are together talking family shit in the kitchen at 3 in the morning, what does mom do? She puts on a pot of coffee. Every morning, then, too, that's got to be the same answer. It's Pascalian, ". . . kneel and move your lips as if you believe. . .", the exact same behaviorist principle. You'd be surprised at how much of life's routine will simply automatically begin its motion, just start to move by itself, once the beans are ground, cold water filled in, and the switch flipped. It all starts. It's all about making coffee.

This is how the terminal psychology seems to work, if I am in any way representative: News from the restaging wasn't really news in the sense it was information I was waiting for but already knew, information I knew would be coming at some point; the only remaining question was precisely "when will it come?" "when does the cancer pick up and start to move again?" Those are the basic stakes, point being that it shouldn't have come as much of a surprise. But the last restaging brought unexpected good news, and so this week, we, I at least, thought "Hey, maybe we'll have one more piece of good news. Just one more."

The pychology: You receive the shittiest news, you absorb and process it, then you begin to live your new life with this knowledge. The infinite amount of time ahead of you, the juggling of projects within the mind indefinitely, the procrastination with little consequence, and simlpy taking every day for granted and people for granted and the concept of "tomorrow" for granted, all of that is wrenched up, turned over or around, and slammed down in some disfigured form. You still have to make use of it, just that now this thing, it is misshapen and unfamiliar almost. Now, the restaging restarts the whole process, but you've been through it once before so that this version is not quite so baffling, the tunnel vision, heavy crushing feeling descending on your skull, the inexplicably loud heartbeat, and the gradually collapsing vision of the whole room around you — all this happens again but not so severely. This time you know it won't beat you, you're not actually worried you'll pass out and wake when head cracks against the exam room white linoleum floor. This time there's more anger than surprise. This time you're faced with how cancer doesn't give two squirts of piss about 8 weeks of rest or healing, it will move on. This is all just to inform you. An expensive way to inform you. You've been playing on your winnings already. One message. Your winnings are about gone. Second message.

Posted by Mr. Jones at 1:56 PM


3 COMMENTS:

lefty said...
FUUUUUUUUUUUUCK!!!!!!!!!!!!!!!!!!!!!!!!!!.....
there, i said it. did it work? did i shout it loud enough? spot, i'm so sorry i haven't commented in forever. i do try and catch up and read everything a few times a week. stolen moments at work, you know.
i go through every day with thoughts of you, the cancer, the past, the future, history with you, history despite you and then WHAM.......the daydreaming and nightdreaming with thoughts of you front and center or blended with something else going on, end. i am jolted back to the present, your present. this can't be happening to you....i remember there is not a damn thing i can do.
i can't remember not knowing you. i don't think you know how important you are to me. all of these random thoughts are driving me mad. i'm trying to keep my girlfriend upright and focused while i'm so pissed off and sad. this long distance really sucks right now. if i could only go pick up some pho (thanks for that spot) and come over tonight. well, i could come and get you and bring you back here with the central air and we could watch home for the holidays and the ref and laugh so hard at all of the familiar, or familial, moments until rice noodles choke us. my thoughts are so crazy jumbled after that post spot. i love you so much. i think i am encroaching on a larry length post : )
just put your chucks on and come over. i miss you and i think laughter is the only decent medicine there is. you know, you are going to miss mormon, i mean pioneer day here in this fair state (not the state fair-that’s something else). a free day off work to eat your favorite...swine. hot dogs for you who are unfamiliar with the crazy customs of this crazy state. it’s bigger than the 4th and we are home to the 3rd? largest parade in the united states. the people camping out are a sight to be seen.
all of the jones’ family will be gathering at tossing salad’s for steak and farmer’s market vegies and fruit and maybe some swine. we will all be thinking, talking and laughing about you. there will be some massive fireworks and then the grind starts again. there will be no effing (sp?) mr. jones senior though. he’s not ready to witness his offsping having fun, i mean, his offspring living “immorally”. save that for another day.
you are in my every gesture and thought.
your eloquent posts are incredible but today knocked me on my ass. larry had to walk away.
xoxo, lefty
7:15 PM, July 22, 2006

tossing salads said...
scott, just had a nice conversation with julias brother who lives across the street from me. im sitting her with tears in my eyes. i love you and i fucking dont want this happening to you. your restaging wasnt the best news but it wasnt the worst news. i have been blessed to be your sister. i can only thank you for the opportunity to have helped name you, change your diaper, watch you hit home runs, be so fucking smart that it was scary. i knew i would never be able to keep up. what a gift you are. thank you for showing me a different way of thinking, of being. i cant even imagine what knowing what you are facing means. i would like to know that i could be so brave, so thoughtful, so giving. i dont think so much is fair. we so need people like you. to make this world a better place. you have never thought of yourself as better just because of your intelliegence. you have just accepted that some can teach, give you knowledge, just accepting. from one of the most intelligent people on the face of the planet. fuck!!!! please keep fighting, all the way. this doesnt deserve you. we deserve you. i love you. i so want to be as brave as you. my thoughts are always with you. thank you.
8:03 PM, July 22, 2006

Anonymous said...

Mr. Scott Jones
this might come across cold, but it is not meant to be. what you posted today, although i wish your illness never happened, i almost feel relieved to hear you confront it. i think it's good that you are so up front and honest about your feelings. what a privilege it is to be able to share that with you through your blogs. there's a lot of intimacy with all of your posts, but the nature of this one seems especially so. thank you. thank you for keeping everyone in the light when it comes to how you are actually handling all of this. you could've just as easily shut everyone out. i think you're right. although i wish with all my heart that things were different, i'm thankful to hear that you're trying to go through one day at a time (whether it'd be making a cup of coffee or something else), you're still getting up to do so - you're still fighting for every bit of "normal"; even though your post reads a little like a part of you is letting go, facing the horrid truth of the matter - i think it's all strength. i know you're just being truthful...but don't forget, "let the chips fall where they may" can still buy a lot of time if you fight for it. please keep fighting -
10:27 PM, July 22, 2006

Tuesday, December 11, 2007

Professor Scott

Some photos of Mr. Jones,
his family and friends.





We miss and love you, Mr. Monkey Man !!

A very kind note from Scott's oncologist.

Dear Scott's Family and Friends,

I am thinking of Scott today, as a year from his passing races up so quickly.
My thoughts are warm and positive about Scott. I remember him very fondly.
I of course feel regrets and frustrations about the horrible thing that cancer is,
and I wish that I could have done better for Scott. I hope you all are holding up ok.
And that you are living fully and with joy, as Scott would want, and as life demands.

My very best to you. My very best to Scott.

Sincerely
Sam Whiting MD



Dear Dr. Whiting,

Thank you for contacting us.
What an unexpected pleasure. We remain, as ever,
so grateful for the loving care you provided Scott.
He felt safe and confident with you and your vast skills-
and for that, and all that you did for him
we are forever grateful.

Our best to you and your family.

Saturday, December 01, 2007

BITS OF GRACE & GRATITUDE





More and more, I am discovering that I am not the only one
whose life Scott touched.
Thank you,  for your kind letters, emails, and for "checking in,"
especially this first Holiday Season of loss.
It means so, so much.
Please feel free to write, comment- whatever.
Somehow, I think your voice and words will find their way
to him.
With love,
Sheri and family
sschapin50@gmail.com
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posted by: slarry

a guest and sibling of mr. jones