Wednesday, January 13, 2010

Missing Mom: In Memory, Nadine Cox Swaner





January 13, 2010


IN LOVING MEMORY:

NADINE COX SWANER

September 13, 1927 ---- January 13, 2006

Saturday, January 13, 2007

Dear family, friends and loved ones,
Today, at 3:25 p.m., our wonderful, beautiful Mother, Spouse, Grandmother,
Aunt and friend,
Nadine Cox Swaner, died at the Huntsman Cancer Institute;
Surrounded by her family.

We held her hands, sang to her, and read her stories.
Stories, that for years and years she read to us.
We stood around her, listening to her breathe-
Even, and especially, as it became less frequent and more shallow.
Thinking, just how beautiful and complete she was.
How formidable, how strong, how determined and selfless she has always been.
A true "Saint of A Mother" to be sure.
And yes, she did make the best Carrot Cake.


It was only one week ago that we were together with many of you,
As we grieved, honored and paid tribute to our brother, her son, Scott.
They were such dear and tender friends;
Their bond and love for one another was deeper and stronger
than one could imagine.
This is a tragic and unexpected loss.
We can only hope they are together,
now both free from pain-
Together, continuing to make a difference.
Together, glowing,
Together, teaching.

The loss of our Mom, the loss of a Mother is especially difficult.
She has loved, protected and taught us so much.
She is unique in all the world.
We count ourselves particularly lucky and blessed to have been hers.

She is grand, eloquent, beautiful, selfless and long suffering.
She will be remembered most for her graciousness, generosity,
unconditional love and magnificent strength.
She lived a determined and purposeful life. Always.
She is the strongest woman we know.
Her faith and love for her Heavenly Father is unparalleled.

Our Mom was a gentle woman, with a twinkle in her eyes
And a smile that could light up every room and brighten any heart.
She brightened all of ours.

We love you Mom! Infinitely and Eternally.
We will miss you more than you will ever know.
Our hearts are broken and we are so sad.

No one, and nothing prepares one adequately for the loss, the death of your Mother.
We promise that we will love and cling to each other, forever and always
And think of you every minute of every day-
We are grateful for every moment and memory we shared with you.

Loves,

Hal, Sue, Sheri, Stacey ( and Scott )


Please feel free to contact us and we will help as best we can.

Sue Swaner: albeez_90@hotmail.com
Sheri Swaner: sschapin50@gmail.com
Stacey Swaner Moore: pancreasboy@comcast.net
Harold Swaner: hbswaner1@gmail.com

A Mother's Love
~
A mother's love determines how we love ourselves and others.
There is no sky we'll ever see
Not lit by that first love.
Stripped of love, the universe
Would drive us mad with pain;
But we are born into a world
That greets our cries with joy.
How much I owe you for the kiss
That told me who I was.
The greatest gift--a love of life--Lay laughing in your eyes.

Because of you my world still has
The soft grace of your smile;
And every wind of fortune bears
The scent of your caress.

Nicholas Gordon

Saturday, December 19, 2009

With Gratitude and Thanks: Scott's Beloveds

SCOTT'S BELOVED FRIENDS:

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Friday, December 18, 2009

Not a day goes by that I don’t think of and miss my brother.
He lived an extraordinary life; a life of purpose, determination and graciousness.
The loss of Scott, his life shortened, stolen by the wretched, insipid and indiscriminate
Diagnosis of Pancreatic Cancer continues to break my heart. It always will.

However, I know that I am not alone in my grief and sadness-
I am not alone in loving, caring, missing or being touched and changed by his unique voice. Scott, indeed, was loved, respected and revered by many.
The rest of my family, his students, his incredible friends and those dearest to him were all shocked and saddened by his death. Also, of equal significance, is the profound effect, the indelible memories of love, learning, laughter he left us with.

Yes, his was an amazing life. How grateful I am that Scott lives on through his works, words, beautiful mind and expansive heart. His relationships were as unique as they way he shared them. Which is to say, each of us knew and loved Scott individually, in our own unique and distinct way and for various reasons.

As the third Anniversary of his death approaches, I am not only reminded of Scott
but also of his loving friends, especially those who loved and cared for him both before his diagnosis and until the moment of his death.

When I flew in to Seattle from Salt Lake, I immediately had to take Scott to the Emergency Room. He was in so much pain and was having difficulty breathing.
He remained in the Hospital until 4 days before he passed away. Many, indeed most, of those memories are harsh and sad. Watching him die, not wanting or able to eat anymore, barely being able to move and sometimes, not able to speak, especially during his last days, are filled with images, feelings of hopelessness and such sorrow.
At times, I was totally paralyzed, often having to leave the hospital, as I could not watch him die.

I continue to have trouble forgiving myself for being so weak-for not being able to “be” and remain in the present for Scott. I just kept falling apart, bit by little bit. I am hoping Scott has forgiven me for that; that he knows and is aware of my heart and true intentions. Knowing Scott, I can only believe that he has and understands.

This post is one of gratitude and thankfulness to all of those who loved and cared for my brother, most especially, his “Seattle Family.” Those precious, courageous, caring, selfless, thoughtful and strong individuals who were with Scott during his illness, daily, indeed, those who were with him until the moment he died.

I don’t know, nor did I meet many of Scott’s friends and colleagues that lived in Seattle but the ones I met, especially those who cared for and watched over Scott during his last days, I wish to thank you. There are not enough words, or words that adequately express how much I appreciate your loving my brother.

To Frank Chiarella, one of Scott’s best friends, indeed, his brother, (mine too) who brought so much love, laughter, balance and incomparable friendship for so many years. I love you big guy, forever and always, just as you know that Scott did. You were beloved to him-but I know you already know that. Also, I want to thank you for the years of friendship and support, you have and continue to be for me. Yes, “You are my favorite thing.”

To Ted Mack, a dear colleague and friend, who was with Scott when he got the horrific news of his diagnosis; you planned birthday parties, spoke at Scott’s funeral, took turns taking Scott to Chemotherapy appointments and supported and loved Scott for so many years. You came to love and care for our Mother as well, for this and many things, I am forever grateful.

To Gillian Harkins, a colleague and dear friend. You are dear to me. So often Scott would write and speak of his closeness, respect and friendship with you. When we all went to dinner one night, I remember seeing my brother smile, hearing his laugh, just as he did before his diagnosis. It made me giddy and I smiled. Also, for your hours at the hospital,
whether taking Scott to his Chemotherapy appointments, or practically living in the hospital, when he became so, so ill. You were always there, often giving no thought for the many things you needed to do, your teaching obligations.
I will always love and appreciate you and remember with fondness, yours and Scott’s friendship.

To Kim Luu: How does one thank the person who was with Scott the moment died? The person who loved, cared for and lived with him, “In sickness and in health?” Truly, I have no words. Your strength of character, selflessness, your ability to minimize Scott’s anxiety-These are moments, characteristics that always amazed me. Please know, forever know, you are and will always be, loved and appreciated by me and my family. You were so often the conduit between and for, giving out vital information to us and all those who loved Scott. You are an amazing woman. I hope this finds you well and happy. And yes, yes, I thank you for everything-for the loving care you gave to Scott.


Indeed, all of these people, brought me and my family comfort and piece of mind, knowing that you were there with him. It helped calm my grieving Mother’s heart, as she was ill herself, and could not be where she wanted; With Scott, her only son and favorite person. She died soon after Scott’s death; Not so much from Leukemia, I think, but from a broken heart. I miss her, too, just as I miss and love my brother.

When I think of all of you, this poem by Emily Dickinson frequently comes to mind.
Please know, forever know, that you fine people not only “eased” Scott’s pain and mind but also that of his family.


"If I can stop one heart from breaking, I shall not live in vain.
If I can ease one life the aching, or cool one pain, or help one fainting robin unto his nest again,
I shall not live in vain."


-- Emily Dickinson

For that and many things, I thank you, Scott’s family thanks you and we will be forever indebted to
and appreciate the love, light and life you gave to him.

With love and gratitude,

Sheri Swaner
sschapin50@gmail.com

Harold Swaner, Sue Swaner, Stacey Swaner Moore, Susan Passino, Kerry Moore, Deborah and Garth Swensen,
Mike and Whitney Luna, Matt Luna Whitney Moore Wilber (Alan,) Dayne Moore and all of Scott’s darling
Great nieces and nephew.












Sunday, December 13, 2009

CHEMOTHERAPY: STRAIGHT-UP, NO CHASER










Sunday, December 13, 2009


IN LOVING MEMORY

of

Scott H Swaner

LIFE: The Crash Course Version


"Death and dying are the easy parts, it's life without someone that's
hard, the harshest ... and as bad as this feels now, it is not the worst part.”


Saturday April 29, 2006

JOURNAL ENTRY #6: ORAL CHEMOTHERAPY


Some bewildered musings and deeper thoughts, one Saturday morning with my brother:

My brother Scott has developed his own scale of pain in a blog he
created. It differentiates between physical and emotional pain.
Consequentially, there are always two numbers-one for how he
feels emotionally, the second indicates how excruciating the
physical, tangible pain is from the cancer that disrupts
and poisons his body daily...how much he hurts.

Today I'm writing about my own pain, as one who loves and cares for
him. How my brother's pain, anguish and befuddlement, is, as the impending end of his life draws ever near, affects me.
And yes, it is painful-- oh, so very much and in so many ways.

As of yet I have found no scale worthy enough, no barometer
or gauge I can go to or use, that adequately describes the pain I am feeling.
I don't think I even want to. It makes it too real. Yet no matter
how hard I try to distract myself, the agony is ever present. It
follows and surrounds me like a dark and ominous cloud.

We started the day with our new morning ritual; a cup of freshly
brewed coffee in hand with me asking what he would like for breakfast.
Food is a sore subject--he has no taste buds and no appetite. So I
am learning to approach the topic delicately, respectfully, though at
times carelessly, in unintended ignorance or avoidance--as if his diet is of no consequence.
Though I know it is.
However, today was different. He didn't respond in his usual way;
"Sheri, I've told you...I don't care what I eat anymore...if it
tastes good or not, even if it something I used to enjoy...Let me just get
something myself. " Today, instead, he said, "Oh, I can't eat
anything yet. Today is an oral chemo day. I have to wait 20
minutes until I can take the chemo pills, then I can eat a little
something after that, but then, yeah, something for breakfast would be great."

I was fine for a moment. Then this awkward silence descended on me.
Both of us realizing, simultaneously, that this one paltry response,
actually spoke volumes. We never used to talk about cancer or
Chemotherapy, but more exact, we never spoke about HIS having
Cancer, let alone the significance of what, how the chemotherapy is killing him too.
And it’s not even a pill that will cure him. It is only a pill that may, MAY
prolong his life, hopefully, a few more months or days, if we are lucky.

Then my brother asked me, half joking, half to break the unbearable
silence, if it bothered me if he took "the pills" infront of me?
Bothered me? I could feel the tears begin to well up, my barrier of
courage cracking as I began to weep. I cannot recall my answer, all
of the words I spoke- Only that they were feeble at best, compared to
all that I was feeling. I answered, though hardly discernible, that
"Yes, it actually bothers me quite a bit ... not that you are doing
it in front of me...just the mere fact that you have to take them at
all ... " "It just makes me so sad...so mad," as the tears
freely rolled down my face, like waves crashing on a shore.

I discovered this poem as I was searching for an Anne Morrow
Lindbergh quote. It attempts to express how and what I was feeling
during my Saturday morning session with my brother.


Fairy tales For My Brother


It seems wherever I go,
People come into my life and go out.
Touching me where I can feel,
Then leaving only a memory
Like the gossamer fairy tales of children easily forgotten.
And I wasn't through knowing them.

How do I know
Whom I am seeing for the last time?
How do you halt your life
To gather and keep fairy tales from losing their magic?

So come.
Brush against the walls of my life
And stay long enough for us to know each other,
Even though you know we will have to part some time.
And we both know the longer you stay,
The more I will want you back when you have gone.

But come anyway.
For fairy tales are the happiest stories we know,
And great books are made of little chapters.
-anonymous

This is my journal entry for today.The significance of watching my
younger and by all accounts, except for his having terminal pancreatic cancer,
healthier brother ingest oral chemotherapy, oral toxic poison, to (hopefully, though painfully)
steal a few more days of LIFE and LIVING.

This is a journey, an experience that no one prepares you for. There
is no rule book to guide me through my anguish and sorrow. And so I
depend on the strength and comfort of my friends, partner, family and
loved ones to help steer me though this. Not for myself -- but so
I can be of some use to him, as he becomes weaker, as I know he will.

What makes this so uncanny and peculiar is, I still find myself relying and depending on him to assist me with the answers on “how to cope” and as a source of strength
and balance. These are two of the roles he is and has always played in my life.

I want and need to be there, for him. Sometimes, though, I don’t know what to do with my fears, the grief and sadness I feel, as I watch him in pain.

I learned early on in his diagnosis, that to pretend that this isn’t happening, to try and distract myself from this harsh reality, is insensitive, superfluous and only causes more pain.
Again, BALANCE; I need to discover my own.
And yes, this scares me and I tremble at the thought of how to really listen, listen to my brother and what he needs. Confronting, standing straight up and forward:
The process of losing my brother.
Doing it alone.

I will follow his lead.

Something else, another observation...As ill and weak as he is, knowing he will die soon, and all the thoughts and fears that come with that knowledge,
Scott still, as always, tries to shield and protect me from what he knows will be
My sorrow, after he is gone. He knows, has always known, how much he means to me.
Indeed, he knows of the ominous hole, void, emptiness that will become a part of my waking life, after he has gone. He is so selfless, thoughtful and gracious-even and in-spite of his facing death, head on.

This I do know: Scott will not, has not and could never lose his "magic."
His importance in my life, if anything, is even more penetrating, alive and prevalent.
The thought of losing him is the most unbearable pain I can think of.

But, "I will come anyway" and join him in his fight and struggle in
trying to make some sense of this most senseless and crude diagnosis
and disease.
He is fighting for his life. I am fighting for his life--and hoping for a miracle.

As I continue to love, enjoy, learn from and honor him,
I am grateful for every moment and experience we have shared. Every thought
and stolen memory I have, and will continue to remember; knowing I was blessed with the most wondrous brother; one who amazes and overwhelms me every day and in every possible way.

My heart breaks a little more each day; With the swallow of a pill, a groan, a sigh,
or the pensive look of ashen pain, that hasn’t left his face since his diagnosis--
Either way, he remains determined, always. Productive, beautiful, self reflective,
and thoughtful, constantly.

His is an amazing life. And yes, I stand amazed and in awe of him.

I love you, my brother.
"This is not good-bye"

Loves,

Sheri

sschapin50@gmail.com


Now, from Scott:


Since the middle of Friday night, when too many of us were ripped from an ignorant sleep, I’ve been searching for “death.” What now? What next? The more I looked around for “death” the more I found that another term, another experience, always seemed to occupy the same page: wherever I found “death” I seemed to find “love,” someone’s love. This poem is one example:

“42. love is more thicker than forget”

love is more thicker than forget
more thinner than recall
more seldom than a wave is wet
more frequent than to fail

it is most mad and moonly
and less it shall unbe
than all the sea which only
is deeper than the sea

love is less always than to win
less never than alive
less bigger than the least begin
less littler than forgive

it is most sane and sunly
and more it cannot die
than all the sky which only
is higher than the sky (CP 530)

So there we have it, from the poet e.e. cummings: we have love and memory, we have love over death, and we have love above all else. Is there anything else we see with more brilliant clarity at this moment? “That which takes place out of love takes place beyond good and evil” (Nietzsche, Beyond Good and Evil 103). In love, in acts of love, in acts of loving memory, we are not working in conflict with someone else’s version of right and wrong. Today in memoriam, we are not here as believers and non-believers, as faithful and faithless, we are here as family. The family first, the family beyond forgetting, the family of love.

When we think of death we are most commonly strictured in our minds by what we assume is the usual pairing of experiences and feelings—in other words, the pair, Life and Death. This, however, begs the question: should we think of these as a natural pair?
The answer is no: rather, it should be thought as Love and Death. Because life and death are not opposites, they are the same. Love and death are opposed, and yet complimentary. It is through love that death acquires meaning, it is through love that death becomes more than Nothingness with a capital “N.”

I used to know a poet who would say of poetry, and therefore of life, that “Fear of loss is every lover’s fear.” If death is the personification of loss, then the lover, is left alone by death, alone to live on until released from, or reconstituted by that loss.
To state it differently, without love death means nothing, it is scientific, numerical, and perfunctory.
Life, of course, it simply dies: death, of course, is already dead, leaving us with love alone. Love alone survives. Love alone resists. To put it in the harshest possible light, love alone is too damn stubborn or stupid to know any better. So we are left here, either too ignorant or too intransigent, standing gaping around this frightful rent in life’s fabric. The gaping hole in meaning and life.

How long will the edge of this fabric support us? We wonder while we weep and gaze into that oblivion. On this side of death we are only left to remember—with pain as the most powerful reminder; we are left to be chastened, at least a little; and we are left to be admonished, somehow, next time, to do better.”

---Scott H. Swaner

All words, works, by and in behalf of Scott H Swaner
Belong to Swaner Family Trust
Copyrighted material

Thursday, October 08, 2009

He Went Not Gently: The Daily Transit




He went not gently
Published June 4, 2007

It is perhaps one of the saddest things in life to lose touch with a person only to later find that they have passed away – the understanding that there will never be a reconnection bears a heavy weight.

This morning, I felt the brunt of this sadness as I tried to look up a former professor of mine from the University of Washington. It was strange; when I failed to find his email in the directory I simply assumed he had moved on to another school – he was a young guy and, as far as I knew, in good health.

I decided to Google his name just to see where he might have wound up, only to come upon the ominous subtext of the first link, from the UW Department of Asian Languages: “The department mourns the passing of…”

I clicked the link anxiously, eyes wide as they jumped between the text and the black and white photograph of my former professor. I spoke aloud and disbelievingly to myself and to the silence of my apartment. Everything was making horrible sense – the emails that were never returned, and in front of me, the glaring fact that he had died last year.

Professor Scott Swaner was not someone I could call a personal friend, which seems quite obvious given my obliviousness to his death. But to me he was somewhat of a kindred spirit. He was my adviser and professor in 2005, and a great scholar of Korean literature.

We shared a common bond in our passion for the culture of the peninsular nation, and I always smile when I think of the comedy of two tall white guys with somewhat outlandish facial hair sitting in an office speaking in Korean. Professor Swaner always pushed me (and all of his students) towards a deeper understanding of Korean culture through literature and towards sharper language skills. He was one of the first professors to really teach me how to think, and he encouraged and further inspired my ambition to be a journalist in Seoul.

I remember fondly other things about him – the Korean movie poster covering his office door, the John Coltrane poster hanging on his wall, and the time we ran into each other at an anti-war rally in downtown Seattle. Professor Swaner was a confident, complex and wise man, and I regret that I didn’t take more time to visit his office hours, to just chat, to listen and learn.

While in subtle mix of disbelief and sorrow this morning, I followed the internet hypertext trail to a comment on an NPR segment on cancer about Professor Swaner, and from there to the blog that he ran from his diagnosis to his death. It’s called Do Not Go Gentle, the title inspired by the poem by Dylan Thomas.

Though I hardly have the heart to backtrack through his battle with the disease, his first post is perhaps one of the most sobering – I’ll re-post a bit of it here:

Imagine you’re moving through your life, beginning your career, enjoying some success and good health, and like anyone else you’re making plans. You’re 38–in many senses it’s the prime of your life. In any event, you’re young still. You liked reading and writing so you went to graduate school, you traveled a bit, in 2003 you started teaching poetry in a university in Seattle. You get halfway through your second year, gearing up to finish that “first book,” when your doctor calls to follow up on some tests about stomach pains you’ve had: “You’ve got cancer of the pancreas.” [...]

It is both an unimaginable nightmare and a stark reality – that life, one day, ends. It is always sad, but for Professor Swaner and all good-hearted people who face death young, it is a tragedy.

Professor Swaner died of pancreatic cancer on December 20, 2006.
He was 38 years-old.



-------------------------------------------------------------------------------------------------

Responses to “He went not gently”

Sheri Swaner

June 5, 2007 at 9:12 pm

My thanks to you for your recognizing
and your writing about my brother, Scott Swaner.
It is always good to her from those who knew him in a different context then that of family.
He was a brilliant writer, insightful teacher–
who loved Korea; its people, language and culture.
I miss him dearly.
And you are correct–
He “did not go gentle .. ” — he fought and raged against this senseless and tragic disease until the day he died.
He is my hero, my best friend–
I’m so glad you two were aqauainted
and I appreciate your caring enough about Scott,
to write about him.
If it is okay- can I pass along your blog to the rest of my family?
Thank you so much.

Sincerely,

Sheri Swaner
Salt Lake City, UT

http://thedailytransit.wordpress.com/2007/06/04/he-went-not-gently/

Pancreatic Cancer News: Rx Reverses Resistance to Chemotherapy

Pancreatic Cancer: Researchers Find Drug That Reverses Resistance To Chemotherapy

NewsRx.com

October 1, 2009

For the first time researchers have shown that by inhibiting the action of an enzyme called TAK-1, it is possible to make pancreatic cancer cells sensitive to chemotherapy, opening the way for the development of a new drug to treat the disease.
Dr Davide Melisi told Europe's largest cancer congress, ECCO 15 - ESMO 34 [1], in Berlin today (Thursday 24 September) that resistance to chemotherapy was the greatest challenge to treating pancreatic cancer.
"Pancreatic cancer is an incurable malignancy, resistant to every anti-cancer treatment. Targeting TAK-1 could be a strategy to revert this resistance, increasing the efficacy of chemotherapy," said Dr Melisi, who until the start of September was a Fellow at the M.D. Anderson Center in Houston (Texas, USA); he has now moved to a staff position at the National Cancer Institute in Naples (Italy). "During the past few years we have been studying the role played by a cytokine or regulatory protein called Transforming Growth Factor beta (TGFbeta) in the development of pancreatic cancer. Recently we focused our attention on a unique enzyme activated by TGFbeta, TAK-1, as a mediator for this extreme drug resistance."
Dr Melisi and his colleagues investigated the expression of TAK-1 (TGFbeta-Activated Kinase-1) in pancreatic cell lines and developed a drug that was capable of inhibiting TAK-1. They tested the activity of the TAK-1 inhibitor on its own and in combination with the anti-cancer drugs gemcitabine, oxaliplatin and SN-38 (a metabolite of the anti-cancer drug irinotecan) in cell lines, and the activity of the TAK-1 inhibitor combined with gemcitabine against pancreatic cancer in mice.
"The use of this TAK-1 inhibitor increased the sensitivity of pancreatic cells to all three chemotherapeutic drugs. By combining it with classic anti-cancer drugs, we were able to use doses of drugs up to 70 times lower in comparison with the control to kill the same number of cancer cells. In mice, we were able to reduce significantly the tumour volume, to prolong the mice survival, and to reduce the toxicity by combining the TAK-1 inhibitor with very low doses of a classic chemotherapeutic drug, gemcitabine, that would have been ineffective otherwise," said Dr Melisi.
The use of gemcitabine on its own against the cancer in mice was ineffective because of the drug resistant nature of the disease. However, once it was combined with the TAK-1 inhibitor, Dr Melisi and his colleagues saw a 78% reduction in tumour volumes. "The median average survival for the control, TAK-1 inhibitor, gemcitabine on its own, or TAK-1 inhibitor combined with gemcitabine was 68, 87, 82 and 122 days respectively," he said.
"This is the first time that TAK-1 has been indicated as a relevant target for the treatment of a solid tumour and that it is a valid approach to reverting the intrinsic drug resistance of pancreatic cancer. The TAK-1 inhibitor used in this study is an exciting drug that warrants further development for the treatment of pancreatic cancer. In the near future, we will study whether it is also able to make other chemotherapeutic agents, such as oxaliplatin, 5-FU or irinotecan, work against pancreatic cancer in mice.
"Our main goal is to translate this combination approach from the bench to the bedside, conducting a clinical trial that could demonstrate the safety of this TAK-1 inhibitor in combination with gemcitabine, and its efficacy, in pancreatic cancer patients."
Copyright 2009, Anti-Infectives Week via NewsRx.com

Thursday, September 10, 2009

A Political Interruption Revisited: Political Cancer







Thursday, September 10, 2009

9/11 Revisited.
Musings, thoughts and Scott's unique perspective On the global tragedy of September 11, 2001.

He would have enjoyed this last election;
The election of President Obama.
Somewhere, somehow, I know Scott is listening-
Continuing his passion of all things political;
What is just and fair, without the hyperbole, meaningless rhetoric
and criminal behavior of George Bush and Company.

Loves to you my brother,

Sheri


Sunday, September 10, 2006

9.10.06, A Political Interruption

While what I'm suggesting might not be a revolution, big banners, tear gas, thrown stones,
I do hope everyone is paying the very closest attention today and tomorrow.
We need to think hard and critically listen, to see through the cock-n-bull political stories that will be fed
to the public as anniversary gifts of 9-11.
I can't not write this hearing what I am in the news.

We will see the mendacious forces of an illegitimate administration —
its Bushes, Cheneys, Rices, Rumsfelds, and Roves — take full and cynical advantage of a five-year old world tragedy.
Not merely a US event. They will spin the tragedy of thousands and thousands of people in the US, and tens of thousands,
if not hundreds, in other countries, to their own domestic political advantage.
The US constitution paralyzed, the Geneva Convention gutted, any sensible conception of human rights
and international law mocked through hypocritical and selective manipulation.

But Bush and his friends will talk of Iraq, and Iran don't forget, of Nazi Germany, of fascism
(the form of political state of affairs which the Bush administration most closely resembles
[if you honestly doubt or don't know it, look up "Fascism" in the Int'l Encyclopedia of Social & Behaioral Sciences]),
and so on ad nauseam.

So disgusting I could spit.

I just know that this morning it begins, on the Sunday morning TV circuit. What kind of nightmare administration do we live under? What kind of legacy are we passively perpetuating?
Today and tomorrow, I can't help but think, will embody the twisted highlight of a sickening logic to their
political power run amok. A ethically lascivious peep-show, the anti-reality hour for oligarchs, soldiers of fortune,
and neo-fascists who will stand in a circle watching, their feet continually shifting on the sticky floor.

And you can see it for FREE, just turn on the tube."


---- mr. jones [Scott H Swaner]




In Memory:
Scott Swaner
January 6, 1968 - December 20, 2006





Also posted here:
http://postmoot.net/archives/860.html
copyrighted

Wednesday, August 12, 2009

Cancer, Coffee and 'What defines A Life?'


Sunday, August 2, 2009

The Art of Living:

“There are moments in time that are meant to be held
Like fragile, breakable things.
There are others that pass us, you can't even tell
Such is their grace and their speed.
And this one is gone in the blink of an eye...
Do you ever jump in without closing your eyes...?”

---Mary Chapin Carpenter

Some thoughts, musings about Life and the purpose of Life. What ‘defines” a life, In the making, creating and living it?
And too, Are we really ‘Living’ given the choices we make every day -- Are we squandering our time; stagnating, unmovable, out of fear, grief, or past experiences? Indeed, are we allowing ‘something’ or ‘someone’ to steer our course and make our way, when we know we should be DOING our own steering and DOING more?
Are we following our dreams- living life to the fullest degree possible? Are we utilizing the tools necessary to
create, mold and shape our lives, our being, Into something worthwhile, purposeful and glorious,
even when the road before us seems ominous and ‘just too hard’ to change from that what we know, are familiar
and comfortable with? Also, are we making certain that we are not taking for granted this glorious Gift;
The Gift of Life, living and time?

A ton of questions... to be sure, but pertinent and the answers are as unique and individualized as are each of us.
No, Not a simple task but the alternative, not having and appreciating life and being open to all of it’s possibilities,
is more bleak, with far reaching implications of dying a little, every day, BY OUR CHOOSING. What does our future hold? Indeed, it does beg the question: “What defines our life, who we are and what we want and are doing with our time?
Are we willing and ready; “to jump full in” (without blinking an eye) when grand, healthy and life changing moments and people: The “fragile and breakable” ones present themselves and invite us to join?

It seems that whenever I get “stuck,” muddled in the spaces in between or find myself at a crossroads, as I do today,
I cannot search long and fast enough to find truth and crucial answers. For better or for worse, I usually find the best and most applicable answers in something that my deceased, younger brother, Scott has written.
For those who know me, this should not come as a surprise. For thirty-eight years I loved, listened to, cared for, adored, honored, appreciated and stood in awe of him;
His accomplishments, his beautiful and self reflective mind and even more expansive heart.
Scott was unique, complex, brilliant; a true genius of sorts. He was also loving, kind, gracious, wise, a good friend,
a beautiful son, a grand and favored brother, a person of balance, theories and an eloquent writer.
These words barely begin to describe and define him, Scott’s life and all that he taught and shared with me and hundreds of others. He was my best friend, my soulmate, the person I enjoyed being around the most.

Is it any wonder ‘why’ I would not continue to seek and learn from him? Yes, he is dead, his physical presence is gone.
I cannot call him on the phone spontaneously, to check and see how and what he is doing. If he has written a new poem? What and all he is thinking about and creating. A huge void, an emptiness remains in my soul and all that encompasses me. Scott has been dead and gone three years this December. Not much time, really, especially when I consider the amount and quality of time we shared; our silly rituals and traditions at Christmas time, when he would always come home. We watched the movie: “Home For The Holidays” at least twice every Christmas, laughing, to the point of almost passing out,
grinning from ear to ear, because the characters in the movie reminded us so much of our own family and similar quirks
and dysfunction.

The emptiness creeps up on me, when I travel to Southern Utah, a place Scott dearly loved and where he sought refuge
and inspiration. When I purchase a sparkly, new fountain pen because of our shared fondness and appreciation of them.
“The Mighty Pen” was one of his tools of creation and beauty. So many memories of my life, are, and will forever be, intertwined and linked with Scott. So as I began to write about life, it’s purpose and what defines a life, I chose Scott as my exemplar. I watched, waited and grieved for the nine months he suffered and fought against the beast of pancreatic cancer. The pain on his gray and often ashen face never left after his diagnosis. It was and remains, the most horrific, painful, heinous and darkest time of my life: Watching my younger, brighter, gifted, talented and beloved brother die, bit by bit, everyday,
as the cancer and chemotherapy ate away at his beautiful life, dreams and body.

This is not meant to be maudlin, except that it is and was. Hopefully it will serve as a basis from which I can begin to write
and express my feelings, thoughts and wonderings, in context, about “Life,” it’s meaning, purpose and definition.
Oh how I miss him- everyday. Not a day goes by that I don’t think of him, the fond memories, life lessons, the bond,
and great and wondrous love we shared as brother and sister and dear, beloved friends.
Sometimes I “get a catch in my throat and I just swallow hard until it leaves me,” Other times, I allow the tears that
are always close to the surface, to flow freely, uncontrollably down my face and neck, yes, a tear streaked salty face,
full of of love, missing and honor.

I will begin by sharing one of Scott’s posts from a journal he kept, a blog and daily account of what he was feeling and experiencing, what it was like for him to face death: “Head On” and continue to LIVE a life full of purpose and meaning, in-spite of, maybe even because of, his knowing that; “soon I die.” Scott lived more in his last nine months of mortality than I have lived in my entire 51 years. So, of course, his definition on “what defines and makes a life and a sense of purpose,
is overtly significant, important, descriptive and noteworthy.

And yes, Scott loved coffee.

---Sheri Swaner


Or, It’s All About Getting Started:

“It is all about Making coffee.” By Mr. Jones, Scott swaner www.donotgogentle.blogspot.com

Revisiting Scott's blog, on July 22, 2006.
Do Not Go Gentle — Poetry & Cancer, Life & Death

[Some thoughts about pancreatic cancer, pancreatica, metastatic cancer, dying young, untimely death, quality of life, then poetry or "a making, a creation" — & what can be left of it while coping with fear and grief and dumb fate; trying to make a life, with what seems like little left. Family & friends, love & loss.]

Saturday, July 22, 2006

7.22.06, Brief Indecision
“Walked into the kitchen, which is still shaded out because of yesterday's heat — and what they say will come today as well, and took a left turn, walked about ten feet to the far wall where I stood facing the sink, coffee maker, coffee grinder, rice maker, dish rack. For a brief moment I thought about what Frank asked me once, or I thought rather the object of his question, at what point when you get up every morning do you think "Ah, fucking cancer"? Today I woke up and it was already woven into my thoughts from the left turn, the ten feet, the facing of the morning machines.
Cancer; cancer, schedule, calendar, how long, tasks, limited range of drugs, more cancer, less calendar . . . for a moment that's all I thought, not consciously but still that's what I woke up with. Then it hit me, "It's simple. Just make coffee. That is clearly the answer to everything." Just like in Home for the Holidays when Holly Hunter and Anne Bancroft are together talking ‘family talk’ in the kitchen at 3 in the morning, what does mom do? She puts on a pot of coffee. Every morning, then, too, that's got to be the same answer. It's Pascalian, ". . .kneel and move your lips as if you believe..." the same behaviorist principle. You'd be surprised at how much of life's routine will simply automatically begin its motion, just start to move by itself, once the beans are ground, cold water filled in, and the switch flipped. It all starts. It's all about making coffee.
This is how the terminal psychology seems to work, if I am in any way representative: News from the re-staging wasn't really news, in a sense it was information I was waiting for but already knew, information I knew would be coming, at some point; the only remaining question was precisely "when will it come?" "when does the cancer pick up and start to move again?" Those are the basic stakes, point being that it shouldn't have come as much of a surprise. But the last re-staging brought unexpected good news, and so this week, we, I at least, thought "Hey, maybe we'll have one more piece of good news. Just one more."

The psychology: You receive the shittiest news, you absorb and process it, then you begin to live your new life with this knowledge. The finite amount of time ahead of you, the juggling of projects within the mind indefinitely, the procrastination with little consequence, and simply taking every day for granted and people for granted and the concept of "tomorrow" for granted, all of that is wrenched up, turned over or around, and slammed down in some disfigured form. You still have to make use of it, just that now this thing, it is misshapen and unfamiliar almost. Now, the re-staging restarts the whole process, but you've been through it once before so that this version is not quite so baffling, the tunnel vision, heavy crushing feeling descending on your skull, the inexplicably loud heartbeat, and the gradually collapsing vision of the whole room around you — all this happens again but not so severely. This time you know it won't beat you, you're not actually worried you'll pass out and wake, when your head cracks against the exam rooms white linoleum floor. This time there's more anger than surprise. This time you're faced with how cancer doesn't give two squirts about 8 weeks of rest or healing: it will move on. This is all just to inform you. An expensive way to inform you. You've been playing on your winnings already. The dice have been rolled in The Big Casino, is one message.
Second message: Your winnings are about gone. You realize, yes, that soon I die.”-- mr. jones
To illustrate, I’m including part of one of the poems that Scott wrote during his fight and life with terminal pancreatic cancer. It serves as the premise, the meaning of a well lived life of defined determination. It is also copyrighted. ; )

“Life, the Crash Course Version”

“Death opens vistas through its immanence. Widened
Vision and broadened possibility both result from the horror
Of the approach, the horror. Every possibility existing gossamer,
Hanging by delicate threads of if, comes to the fore of when-
Pain’s freedom is finally achieved.”

--SHS


This particular post of Mr. Jones, was originally written and posted
On Friday, July 14, 2006.
He passed away a little over 5 months after writing this.
I am re-posting it for several reasons. First, because it is one of favored writings,
Second, Scott could have written the theme of this post at any given time in his 38 years.

Scott lived! Scott Lived, each day of his life was purposeful and determined.
A good lesson for all of us, no?
Certainly a lesson that I need to work on; a lesson he reminded me of,
Either in word or by how he lived his life; Honestly, with conviction,
and determination.

What Defines This Life, What defined Scott's life?
Most of the answers are found within this post.

I miss you, Scott.
Sometimes more than I can bear...but then I remember what you asked me to do;
And I try harder. The missing never goes away, though. Ever.

Love,

Sheri

7.14.07, "What Defines This Life?" You Ask By Mr. Jones aka Scott Swaner

*Franky Scale: Why just one? Started about 6, dropped to a 5 for a while till I did some pharmacological adjustment. Ended up close to 7, the day was good, saying good bye to Ms. T over crumpets and books at the Left Bank, then with Mme. X for a dinner of bar food.

*Dearest Prof. Jeong, Yonsei University,

First, I wanted to let you know that this is the right blog. I was so glad to get news of you recently, or more accurately news that my fucked-up news had reached you. And I was moved by and can imagine your reaction. It's been too long since we've seen each other and I hope, as always, only the best for you. I miss being able to drop in and discuss aleatory Marxism, Althusser, and modern poetry. Whether the category "lyric" is salvageable let alone salutary . . . figuring out what Hwang Jiwoo is talking about . . . So much there left undiscussed. Also, I'm sorry if the pseudonym threw you off track, my nom de guerre, as it were. For professional reasons I withheld my real name initially and the "Mr. Jones" trope, though I haven't yet discussed its why's and where-fore's, has proven useful in unexpected ways. Let's talk soon, I'll try to email.

*There is a certain clarity I possess, or feel possessed of these days, only occasionally, usually around this hour of twilight — not meant to sound either Romantic or mystical, just noting the phenomenon — so at this time, when the combination of hunger / fullness, pain / non-pain, nausea / calm, etc. settles down below the most obvious level of consciousness, then I feel my fingers freed up (odd metaphor of the keyboard age), and a certain sense of vision accompanies this: not Blakean, or Ginsbergian (after Blake) but more Spinozist, it's almost scientific, that of a lens grinder, someone who is thinking of visual theory at the same time as rhetoric. I hope it combines to produce something lucid or pellucid even or even merely reflective of the clarity. Gibberish? Could be. Oxycotton? Could be.

*An Anonymous writer posted a few questions on the post called
"What Cannot be Said" from two days ago; it ran as follows:

"Question to consider (or not?)
[a] what if all questions are the wrong questions at this moment?
[b] it isn't as simple as what to do with your time;
[c] rather, what will you do regardless?
[d] not what to do in the time left, but what would you do anyway, given one week or one year?
[e] what defines the life you have chosen?" [I've added the letters for easier reference.]

The final question #e I can answer with some confidence, what defines a life, whether chosen or fallen into,
Is always the same it seems: it's action, the practices of everyday life, movement, activity.
All the talk and hyperbole, all the promises and the efforts, all the intentions and the apologies,
And finally, all the ideals and the general wishes or desires — none of it means more than a passing comment in a dark bar.
In the end it is part of a failed seduction. In the middle and the beginning, too, it's nearly meaningless, however, we can more easily kid ourselves, succumb to an ideology that allows us to remain productive.
In the end, after all is said and done: It is only the book that is published, printed, or passed around and read at least, is the book that counts. All the ideas for other books, all the drafts (in the mind) and sketchy notes, disorganized notes don't count.
The “Other” ideal profession doesn't count, only the one you actually did. Me, professor, modern Korean literature, poetry, aesthetic theory. Like it or not, that's what defines me, it's where I've come. It’s what I DO. Most simply put, I can't help but think more and more surely over recent years and especially now, that only what one does is what defines one's life.

As a brief interjection, these questions have all been covered on the blog before. In fact, they're nearly the primary philosophical or psychological reason for starting, for figuring it out. That said, I'm glad they're raised again since revisiting them now and then is always a good idea. Too, things change quickly in the Big Casino.
The roll of the dice, the hand you have been dealt...
(And too, also, it's good to have comments to engage with now and then on the blog.)

Question #d is, to put it rather directly, not relevant. Not anymore,
not to me during this period; the knowledge of a foreshortened life.
The meaning of all activity has radically changed for me since I was introduced to terminal cancer, except to the extent that I think of the act and action as described in the paragraph above.
To ask what "I" would do "regardless" (#c and #d) of this situation means to ignore this situation;
One would have to confront it ‘head on’ and then decide to live in defiance
of its reality.
I think that's somewhat counterproductive, especially considering the numerous epiphanies the experience affords.
So much new insight to be had from the “2x4-across-the-head” nature and thud of this new knowledge;
That not only am I mortal (of course) but that my mortality has been radically foreshortened into a number of months.
I'm supposed to be able to count them on both hands, if I’m lucky.
(The timeline now, based on admittedly less than ideal statistical averages, in fact puts down the number of months like this.) Finally and practically, I probably would not be concerned with writing a memoir currently without the news.
Life's obligations would push all that aside.

I suppose the latter two questions addressed would be quite on target for someone at home with eternal recurrence, someone unquestionably not possessed by the notion of "the grass is greener," someone who had made all the "perfect" life choices and was either in unquestionable love with her work or independently wealthy. Wouldn't it be nice — sorry, not be sarcastic toward anyone who's so comfortable in their skin (and / or loaded), it's just never been me.

On #b, looks like I screwed up my numbering.

On #a, I wonder the same frequently: do they need to be asked? The facile Socratic retort doesn't apply I think; and yet if there is ever a time to do perhaps this precisely is the time . . .?
One thing for sure, and no one every said I wasn't picky about language, but the logic of "at this moment"
Does miss the primary fact of what it means to be confronted "prematurely" with death.
The Moment becomes This one, for better or worse.
The next moment may never come.

And how can I resist the return to aleatory Marxism, above, to note again that
"The lonely moment of the last instance never comes"?
Perhaps it's time for me to reevaluate that proposition considering my new context . . .

Posted by Mr. Jones at 7:15 PM

8:25 PM, July 15, 2006

Wednesday, June 10, 2009

STAND UP TO CANCER - It Sucks










FOR IMMEDIATE RELEASE

STAND UP TO CANCER AWARDS $18 MILLION TO TGEN AND UNIVERSITY OF PENNSYLVANIA FOR PANCREATIC
CANCER RESEARCH

President and CEO of the Pancreatic Cancer Action Network to
Serve as Patient Advocate

EL SEGUNDO, CA – (May 27, 2009) –The Translational Genomics Research Institute (TGen) and the University of Pennsylvania (Penn) will receive $18 million to research pancreatic cancer, Stand Up to Cancer (SU2C) announced today. Dr. Daniel Von Hoff, TGen's Physician-In-Chief, and Dr. Craig B. Thompson, Director of the Abramson Cancer Center at Penn, are co-leaders of SU2C pancreatic cancer "Dream Team,'' which will lead a three-year investigation into new approaches to treating pancreatic cancer. Julie Fleshman, president and CEO of the Pancreatic Cancer Action Network will serve as patient advocate of the pancreatic cancer Dream Team.

“The $18 million awarded today for pancreatic cancer is a significant step in the fight against pancreatic cancer, a disease that has seen very little scientific progress over the past few decades due to the lack of funding for research,” stated Fleshman. “I am honored to serve as patient advocate on the pancreatic cancer Dream Team and look forward to working with Dr. Von Hoff and Dr. Thompson as they begin this very important project.”

The $18 million to TGen and Penn was the largest single grant among five awards, totaling $74 million, announced by SU2C, a philanthropic group created by cancer scientists and members of the entertainment industry a year ago today to quickly turn scientific discoveries into ways to care for cancer patients.

The goal of the pancreatic cancer Dream Team research project – "Cutting Off the Fuel Supply'' – is to develop tests, using advanced imaging techniques, to determine what nutrients pancreatic cancer cells require to fuel their growth and survival. Understanding the cell's fuel supply will help scientists develop more individualized treatments with fewer side effects.

TGen and its clinical partner at TCRS will launch a series of innovative clinical trials in advanced pancreatic cancer. These clinical trials will be designed to deprive pancreatic tumors of crucial nutrients, thereby cutting off the fuel supply. Other clinical sites in the study are at Penn in Philadelphia and at John Hopkins University in Baltimore.

Pancreatic cancer is the fourth leading cause of cancer death in the United States. In 2009, 42,470 people will be diagnosed with pancreatic cancer and 35,240 will die. The five year survival rate is 5 percent, making pancreatic cancer the most lethal among leading cancer killers.

The TGen-Penn team will combine translational methods developed at the University of Pennsylvania with individualized-therapies emphasized by TGen to rapidly move laboratory findings to bedside treatments, benefiting pancreatic cancer patients as quickly as possible. They will test the drugs in combination with existing standard chemotherapy, with the hope of improving quality of life while increasing the percentage of patients surviving beyond one year.

“This project is critical to extending the lives of pancreatic cancer patients; 75 percent die within the first year of diagnosis because of the lack of effective treatments,” added Fleshman. “We are hopeful the pancreatic cancer Dream Team can change this statistic through their collaboration.”

To learn more about the Pancreatic Cancer Action Network, visit www.pancan.org. And, for more information on the other Dream Teams, visit www.su2c.org.

About the Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network is the only national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization raises money for direct private funding of research—and advocates for more aggressive federal research funding of medical breakthroughs in prevention, diagnosis and treatment of pancreatic cancer.

The Pancreatic Cancer Action Network fills the void of information and options by giving patients and caregivers reliable, personalized information they need to make informed decisions. We create a sense of hope and community so no one has to face pancreatic cancer alone. The organization helps support individuals and communities all across the country to work together to raise awareness and funds to find a cure for pancreatic cancer.

About Stand Up To Cancer
The Stand Up To Cancer (SU2C) movement raises funds to hasten the pace of groundbreaking translational research that can get new therapies to patients quickly and save lives. In 2007, a group of women whose lives have all been affected by cancer in profound ways began working together to marshal the resources of the media and entertainment industries in the fight against the disease. For more information about Stand Up To Cancer, please visit www.su2c.org.

# # #

CONTACT:

Jennifer Reeves
Public Relations Manager
Pancreatic Cancer Action Network
Direct: 310-321-6542
Email: jreeves@pancan.org




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