Showing posts with label death. Show all posts
Showing posts with label death. Show all posts

Monday, December 20, 2010

AFTERMATH: Life WIthout My Brother and MOM












THE AFTERMATH Holidays without Scott and Mom




I still can’t imagine my life without my brother and Mom being an
every day part of it. I know it is real, as real as it has been,
for the last eleven months. The knot in the pitt of
my stomach is a constant reminder.

It has been almost a year since Scott passed away.
I guess for the most part, I am doing ok; functioning, getting up in the morning
going about, and doing, what appears to be my life.
Yet, there are times when the "two-by-four" feeling and thud, strikes
me with a blow and force, that knocks me down on my
emotional ass. I stay there for a while and think and wonder...
The shock and emptiness of it all. The harsh, tragic realities that happen,
in this thing we call life.

As much as I sit here, stagnating, thinking and wondering,
I already know what they want me to do.
Stand up, shake myself off,
and get on with things; my life. LIVING.
That is what Scott asked of and wished for me,
mere hours before he died.
Not distracting myself from the pain and emptiness I feel-
but how to live and carry on inspite of it.

Scott believed that distraction is an activity that averts
our eyes from seeing what is really happening, all that is REAL.
Yes, I am a grieving sister and daughter, yes, the loss of my brother and mom
will follow me wherever I go.
I won’t distract myself from the pain that surrounds me.
I will follow their lead-
and LIVE.
Enjoy and be grateful, for all that I have.
The family and friends I have been
so richly blessed with.
Grateful for those who love and care for my brother and Mom.

Be grateful for even the mundane.
They were.

loves and hugs.
I, we, all miss you so very much.

love,

Slarry

Sunday, December 13, 2009

CHEMOTHERAPY: STRAIGHT-UP, NO CHASER










Sunday, December 13, 2009


IN LOVING MEMORY

of

Scott H Swaner

LIFE: The Crash Course Version


"Death and dying are the easy parts, it's life without someone that's
hard, the harshest ... and as bad as this feels now, it is not the worst part.”


Saturday April 29, 2006

JOURNAL ENTRY #6: ORAL CHEMOTHERAPY


Some bewildered musings and deeper thoughts, one Saturday morning with my brother:

My brother Scott has developed his own scale of pain in a blog he
created. It differentiates between physical and emotional pain.
Consequentially, there are always two numbers-one for how he
feels emotionally, the second indicates how excruciating the
physical, tangible pain is from the cancer that disrupts
and poisons his body daily...how much he hurts.

Today I'm writing about my own pain, as one who loves and cares for
him. How my brother's pain, anguish and befuddlement, is, as the impending end of his life draws ever near, affects me.
And yes, it is painful-- oh, so very much and in so many ways.

As of yet I have found no scale worthy enough, no barometer
or gauge I can go to or use, that adequately describes the pain I am feeling.
I don't think I even want to. It makes it too real. Yet no matter
how hard I try to distract myself, the agony is ever present. It
follows and surrounds me like a dark and ominous cloud.

We started the day with our new morning ritual; a cup of freshly
brewed coffee in hand with me asking what he would like for breakfast.
Food is a sore subject--he has no taste buds and no appetite. So I
am learning to approach the topic delicately, respectfully, though at
times carelessly, in unintended ignorance or avoidance--as if his diet is of no consequence.
Though I know it is.
However, today was different. He didn't respond in his usual way;
"Sheri, I've told you...I don't care what I eat anymore...if it
tastes good or not, even if it something I used to enjoy...Let me just get
something myself. " Today, instead, he said, "Oh, I can't eat
anything yet. Today is an oral chemo day. I have to wait 20
minutes until I can take the chemo pills, then I can eat a little
something after that, but then, yeah, something for breakfast would be great."

I was fine for a moment. Then this awkward silence descended on me.
Both of us realizing, simultaneously, that this one paltry response,
actually spoke volumes. We never used to talk about cancer or
Chemotherapy, but more exact, we never spoke about HIS having
Cancer, let alone the significance of what, how the chemotherapy is killing him too.
And it’s not even a pill that will cure him. It is only a pill that may, MAY
prolong his life, hopefully, a few more months or days, if we are lucky.

Then my brother asked me, half joking, half to break the unbearable
silence, if it bothered me if he took "the pills" infront of me?
Bothered me? I could feel the tears begin to well up, my barrier of
courage cracking as I began to weep. I cannot recall my answer, all
of the words I spoke- Only that they were feeble at best, compared to
all that I was feeling. I answered, though hardly discernible, that
"Yes, it actually bothers me quite a bit ... not that you are doing
it in front of me...just the mere fact that you have to take them at
all ... " "It just makes me so sad...so mad," as the tears
freely rolled down my face, like waves crashing on a shore.

I discovered this poem as I was searching for an Anne Morrow
Lindbergh quote. It attempts to express how and what I was feeling
during my Saturday morning session with my brother.


Fairy tales For My Brother


It seems wherever I go,
People come into my life and go out.
Touching me where I can feel,
Then leaving only a memory
Like the gossamer fairy tales of children easily forgotten.
And I wasn't through knowing them.

How do I know
Whom I am seeing for the last time?
How do you halt your life
To gather and keep fairy tales from losing their magic?

So come.
Brush against the walls of my life
And stay long enough for us to know each other,
Even though you know we will have to part some time.
And we both know the longer you stay,
The more I will want you back when you have gone.

But come anyway.
For fairy tales are the happiest stories we know,
And great books are made of little chapters.
-anonymous

This is my journal entry for today.The significance of watching my
younger and by all accounts, except for his having terminal pancreatic cancer,
healthier brother ingest oral chemotherapy, oral toxic poison, to (hopefully, though painfully)
steal a few more days of LIFE and LIVING.

This is a journey, an experience that no one prepares you for. There
is no rule book to guide me through my anguish and sorrow. And so I
depend on the strength and comfort of my friends, partner, family and
loved ones to help steer me though this. Not for myself -- but so
I can be of some use to him, as he becomes weaker, as I know he will.

What makes this so uncanny and peculiar is, I still find myself relying and depending on him to assist me with the answers on “how to cope” and as a source of strength
and balance. These are two of the roles he is and has always played in my life.

I want and need to be there, for him. Sometimes, though, I don’t know what to do with my fears, the grief and sadness I feel, as I watch him in pain.

I learned early on in his diagnosis, that to pretend that this isn’t happening, to try and distract myself from this harsh reality, is insensitive, superfluous and only causes more pain.
Again, BALANCE; I need to discover my own.
And yes, this scares me and I tremble at the thought of how to really listen, listen to my brother and what he needs. Confronting, standing straight up and forward:
The process of losing my brother.
Doing it alone.

I will follow his lead.

Something else, another observation...As ill and weak as he is, knowing he will die soon, and all the thoughts and fears that come with that knowledge,
Scott still, as always, tries to shield and protect me from what he knows will be
My sorrow, after he is gone. He knows, has always known, how much he means to me.
Indeed, he knows of the ominous hole, void, emptiness that will become a part of my waking life, after he has gone. He is so selfless, thoughtful and gracious-even and in-spite of his facing death, head on.

This I do know: Scott will not, has not and could never lose his "magic."
His importance in my life, if anything, is even more penetrating, alive and prevalent.
The thought of losing him is the most unbearable pain I can think of.

But, "I will come anyway" and join him in his fight and struggle in
trying to make some sense of this most senseless and crude diagnosis
and disease.
He is fighting for his life. I am fighting for his life--and hoping for a miracle.

As I continue to love, enjoy, learn from and honor him,
I am grateful for every moment and experience we have shared. Every thought
and stolen memory I have, and will continue to remember; knowing I was blessed with the most wondrous brother; one who amazes and overwhelms me every day and in every possible way.

My heart breaks a little more each day; With the swallow of a pill, a groan, a sigh,
or the pensive look of ashen pain, that hasn’t left his face since his diagnosis--
Either way, he remains determined, always. Productive, beautiful, self reflective,
and thoughtful, constantly.

His is an amazing life. And yes, I stand amazed and in awe of him.

I love you, my brother.
"This is not good-bye"

Loves,

Sheri

sschapin50@gmail.com


Now, from Scott:


Since the middle of Friday night, when too many of us were ripped from an ignorant sleep, I’ve been searching for “death.” What now? What next? The more I looked around for “death” the more I found that another term, another experience, always seemed to occupy the same page: wherever I found “death” I seemed to find “love,” someone’s love. This poem is one example:

“42. love is more thicker than forget”

love is more thicker than forget
more thinner than recall
more seldom than a wave is wet
more frequent than to fail

it is most mad and moonly
and less it shall unbe
than all the sea which only
is deeper than the sea

love is less always than to win
less never than alive
less bigger than the least begin
less littler than forgive

it is most sane and sunly
and more it cannot die
than all the sky which only
is higher than the sky (CP 530)

So there we have it, from the poet e.e. cummings: we have love and memory, we have love over death, and we have love above all else. Is there anything else we see with more brilliant clarity at this moment? “That which takes place out of love takes place beyond good and evil” (Nietzsche, Beyond Good and Evil 103). In love, in acts of love, in acts of loving memory, we are not working in conflict with someone else’s version of right and wrong. Today in memoriam, we are not here as believers and non-believers, as faithful and faithless, we are here as family. The family first, the family beyond forgetting, the family of love.

When we think of death we are most commonly strictured in our minds by what we assume is the usual pairing of experiences and feelings—in other words, the pair, Life and Death. This, however, begs the question: should we think of these as a natural pair?
The answer is no: rather, it should be thought as Love and Death. Because life and death are not opposites, they are the same. Love and death are opposed, and yet complimentary. It is through love that death acquires meaning, it is through love that death becomes more than Nothingness with a capital “N.”

I used to know a poet who would say of poetry, and therefore of life, that “Fear of loss is every lover’s fear.” If death is the personification of loss, then the lover, is left alone by death, alone to live on until released from, or reconstituted by that loss.
To state it differently, without love death means nothing, it is scientific, numerical, and perfunctory.
Life, of course, it simply dies: death, of course, is already dead, leaving us with love alone. Love alone survives. Love alone resists. To put it in the harshest possible light, love alone is too damn stubborn or stupid to know any better. So we are left here, either too ignorant or too intransigent, standing gaping around this frightful rent in life’s fabric. The gaping hole in meaning and life.

How long will the edge of this fabric support us? We wonder while we weep and gaze into that oblivion. On this side of death we are only left to remember—with pain as the most powerful reminder; we are left to be chastened, at least a little; and we are left to be admonished, somehow, next time, to do better.”

---Scott H. Swaner

All words, works, by and in behalf of Scott H Swaner
Belong to Swaner Family Trust
Copyrighted material

Wednesday, August 12, 2009

Cancer, Coffee and 'What defines A Life?'


Sunday, August 2, 2009

The Art of Living:

“There are moments in time that are meant to be held
Like fragile, breakable things.
There are others that pass us, you can't even tell
Such is their grace and their speed.
And this one is gone in the blink of an eye...
Do you ever jump in without closing your eyes...?”

---Mary Chapin Carpenter

Some thoughts, musings about Life and the purpose of Life. What ‘defines” a life, In the making, creating and living it?
And too, Are we really ‘Living’ given the choices we make every day -- Are we squandering our time; stagnating, unmovable, out of fear, grief, or past experiences? Indeed, are we allowing ‘something’ or ‘someone’ to steer our course and make our way, when we know we should be DOING our own steering and DOING more?
Are we following our dreams- living life to the fullest degree possible? Are we utilizing the tools necessary to
create, mold and shape our lives, our being, Into something worthwhile, purposeful and glorious,
even when the road before us seems ominous and ‘just too hard’ to change from that what we know, are familiar
and comfortable with? Also, are we making certain that we are not taking for granted this glorious Gift;
The Gift of Life, living and time?

A ton of questions... to be sure, but pertinent and the answers are as unique and individualized as are each of us.
No, Not a simple task but the alternative, not having and appreciating life and being open to all of it’s possibilities,
is more bleak, with far reaching implications of dying a little, every day, BY OUR CHOOSING. What does our future hold? Indeed, it does beg the question: “What defines our life, who we are and what we want and are doing with our time?
Are we willing and ready; “to jump full in” (without blinking an eye) when grand, healthy and life changing moments and people: The “fragile and breakable” ones present themselves and invite us to join?

It seems that whenever I get “stuck,” muddled in the spaces in between or find myself at a crossroads, as I do today,
I cannot search long and fast enough to find truth and crucial answers. For better or for worse, I usually find the best and most applicable answers in something that my deceased, younger brother, Scott has written.
For those who know me, this should not come as a surprise. For thirty-eight years I loved, listened to, cared for, adored, honored, appreciated and stood in awe of him;
His accomplishments, his beautiful and self reflective mind and even more expansive heart.
Scott was unique, complex, brilliant; a true genius of sorts. He was also loving, kind, gracious, wise, a good friend,
a beautiful son, a grand and favored brother, a person of balance, theories and an eloquent writer.
These words barely begin to describe and define him, Scott’s life and all that he taught and shared with me and hundreds of others. He was my best friend, my soulmate, the person I enjoyed being around the most.

Is it any wonder ‘why’ I would not continue to seek and learn from him? Yes, he is dead, his physical presence is gone.
I cannot call him on the phone spontaneously, to check and see how and what he is doing. If he has written a new poem? What and all he is thinking about and creating. A huge void, an emptiness remains in my soul and all that encompasses me. Scott has been dead and gone three years this December. Not much time, really, especially when I consider the amount and quality of time we shared; our silly rituals and traditions at Christmas time, when he would always come home. We watched the movie: “Home For The Holidays” at least twice every Christmas, laughing, to the point of almost passing out,
grinning from ear to ear, because the characters in the movie reminded us so much of our own family and similar quirks
and dysfunction.

The emptiness creeps up on me, when I travel to Southern Utah, a place Scott dearly loved and where he sought refuge
and inspiration. When I purchase a sparkly, new fountain pen because of our shared fondness and appreciation of them.
“The Mighty Pen” was one of his tools of creation and beauty. So many memories of my life, are, and will forever be, intertwined and linked with Scott. So as I began to write about life, it’s purpose and what defines a life, I chose Scott as my exemplar. I watched, waited and grieved for the nine months he suffered and fought against the beast of pancreatic cancer. The pain on his gray and often ashen face never left after his diagnosis. It was and remains, the most horrific, painful, heinous and darkest time of my life: Watching my younger, brighter, gifted, talented and beloved brother die, bit by bit, everyday,
as the cancer and chemotherapy ate away at his beautiful life, dreams and body.

This is not meant to be maudlin, except that it is and was. Hopefully it will serve as a basis from which I can begin to write
and express my feelings, thoughts and wonderings, in context, about “Life,” it’s meaning, purpose and definition.
Oh how I miss him- everyday. Not a day goes by that I don’t think of him, the fond memories, life lessons, the bond,
and great and wondrous love we shared as brother and sister and dear, beloved friends.
Sometimes I “get a catch in my throat and I just swallow hard until it leaves me,” Other times, I allow the tears that
are always close to the surface, to flow freely, uncontrollably down my face and neck, yes, a tear streaked salty face,
full of of love, missing and honor.

I will begin by sharing one of Scott’s posts from a journal he kept, a blog and daily account of what he was feeling and experiencing, what it was like for him to face death: “Head On” and continue to LIVE a life full of purpose and meaning, in-spite of, maybe even because of, his knowing that; “soon I die.” Scott lived more in his last nine months of mortality than I have lived in my entire 51 years. So, of course, his definition on “what defines and makes a life and a sense of purpose,
is overtly significant, important, descriptive and noteworthy.

And yes, Scott loved coffee.

---Sheri Swaner


Or, It’s All About Getting Started:

“It is all about Making coffee.” By Mr. Jones, Scott swaner www.donotgogentle.blogspot.com

Revisiting Scott's blog, on July 22, 2006.
Do Not Go Gentle — Poetry & Cancer, Life & Death

[Some thoughts about pancreatic cancer, pancreatica, metastatic cancer, dying young, untimely death, quality of life, then poetry or "a making, a creation" — & what can be left of it while coping with fear and grief and dumb fate; trying to make a life, with what seems like little left. Family & friends, love & loss.]

Saturday, July 22, 2006

7.22.06, Brief Indecision
“Walked into the kitchen, which is still shaded out because of yesterday's heat — and what they say will come today as well, and took a left turn, walked about ten feet to the far wall where I stood facing the sink, coffee maker, coffee grinder, rice maker, dish rack. For a brief moment I thought about what Frank asked me once, or I thought rather the object of his question, at what point when you get up every morning do you think "Ah, fucking cancer"? Today I woke up and it was already woven into my thoughts from the left turn, the ten feet, the facing of the morning machines.
Cancer; cancer, schedule, calendar, how long, tasks, limited range of drugs, more cancer, less calendar . . . for a moment that's all I thought, not consciously but still that's what I woke up with. Then it hit me, "It's simple. Just make coffee. That is clearly the answer to everything." Just like in Home for the Holidays when Holly Hunter and Anne Bancroft are together talking ‘family talk’ in the kitchen at 3 in the morning, what does mom do? She puts on a pot of coffee. Every morning, then, too, that's got to be the same answer. It's Pascalian, ". . .kneel and move your lips as if you believe..." the same behaviorist principle. You'd be surprised at how much of life's routine will simply automatically begin its motion, just start to move by itself, once the beans are ground, cold water filled in, and the switch flipped. It all starts. It's all about making coffee.
This is how the terminal psychology seems to work, if I am in any way representative: News from the re-staging wasn't really news, in a sense it was information I was waiting for but already knew, information I knew would be coming, at some point; the only remaining question was precisely "when will it come?" "when does the cancer pick up and start to move again?" Those are the basic stakes, point being that it shouldn't have come as much of a surprise. But the last re-staging brought unexpected good news, and so this week, we, I at least, thought "Hey, maybe we'll have one more piece of good news. Just one more."

The psychology: You receive the shittiest news, you absorb and process it, then you begin to live your new life with this knowledge. The finite amount of time ahead of you, the juggling of projects within the mind indefinitely, the procrastination with little consequence, and simply taking every day for granted and people for granted and the concept of "tomorrow" for granted, all of that is wrenched up, turned over or around, and slammed down in some disfigured form. You still have to make use of it, just that now this thing, it is misshapen and unfamiliar almost. Now, the re-staging restarts the whole process, but you've been through it once before so that this version is not quite so baffling, the tunnel vision, heavy crushing feeling descending on your skull, the inexplicably loud heartbeat, and the gradually collapsing vision of the whole room around you — all this happens again but not so severely. This time you know it won't beat you, you're not actually worried you'll pass out and wake, when your head cracks against the exam rooms white linoleum floor. This time there's more anger than surprise. This time you're faced with how cancer doesn't give two squirts about 8 weeks of rest or healing: it will move on. This is all just to inform you. An expensive way to inform you. You've been playing on your winnings already. The dice have been rolled in The Big Casino, is one message.
Second message: Your winnings are about gone. You realize, yes, that soon I die.”-- mr. jones
To illustrate, I’m including part of one of the poems that Scott wrote during his fight and life with terminal pancreatic cancer. It serves as the premise, the meaning of a well lived life of defined determination. It is also copyrighted. ; )

“Life, the Crash Course Version”

“Death opens vistas through its immanence. Widened
Vision and broadened possibility both result from the horror
Of the approach, the horror. Every possibility existing gossamer,
Hanging by delicate threads of if, comes to the fore of when-
Pain’s freedom is finally achieved.”

--SHS


This particular post of Mr. Jones, was originally written and posted
On Friday, July 14, 2006.
He passed away a little over 5 months after writing this.
I am re-posting it for several reasons. First, because it is one of favored writings,
Second, Scott could have written the theme of this post at any given time in his 38 years.

Scott lived! Scott Lived, each day of his life was purposeful and determined.
A good lesson for all of us, no?
Certainly a lesson that I need to work on; a lesson he reminded me of,
Either in word or by how he lived his life; Honestly, with conviction,
and determination.

What Defines This Life, What defined Scott's life?
Most of the answers are found within this post.

I miss you, Scott.
Sometimes more than I can bear...but then I remember what you asked me to do;
And I try harder. The missing never goes away, though. Ever.

Love,

Sheri

7.14.07, "What Defines This Life?" You Ask By Mr. Jones aka Scott Swaner

*Franky Scale: Why just one? Started about 6, dropped to a 5 for a while till I did some pharmacological adjustment. Ended up close to 7, the day was good, saying good bye to Ms. T over crumpets and books at the Left Bank, then with Mme. X for a dinner of bar food.

*Dearest Prof. Jeong, Yonsei University,

First, I wanted to let you know that this is the right blog. I was so glad to get news of you recently, or more accurately news that my fucked-up news had reached you. And I was moved by and can imagine your reaction. It's been too long since we've seen each other and I hope, as always, only the best for you. I miss being able to drop in and discuss aleatory Marxism, Althusser, and modern poetry. Whether the category "lyric" is salvageable let alone salutary . . . figuring out what Hwang Jiwoo is talking about . . . So much there left undiscussed. Also, I'm sorry if the pseudonym threw you off track, my nom de guerre, as it were. For professional reasons I withheld my real name initially and the "Mr. Jones" trope, though I haven't yet discussed its why's and where-fore's, has proven useful in unexpected ways. Let's talk soon, I'll try to email.

*There is a certain clarity I possess, or feel possessed of these days, only occasionally, usually around this hour of twilight — not meant to sound either Romantic or mystical, just noting the phenomenon — so at this time, when the combination of hunger / fullness, pain / non-pain, nausea / calm, etc. settles down below the most obvious level of consciousness, then I feel my fingers freed up (odd metaphor of the keyboard age), and a certain sense of vision accompanies this: not Blakean, or Ginsbergian (after Blake) but more Spinozist, it's almost scientific, that of a lens grinder, someone who is thinking of visual theory at the same time as rhetoric. I hope it combines to produce something lucid or pellucid even or even merely reflective of the clarity. Gibberish? Could be. Oxycotton? Could be.

*An Anonymous writer posted a few questions on the post called
"What Cannot be Said" from two days ago; it ran as follows:

"Question to consider (or not?)
[a] what if all questions are the wrong questions at this moment?
[b] it isn't as simple as what to do with your time;
[c] rather, what will you do regardless?
[d] not what to do in the time left, but what would you do anyway, given one week or one year?
[e] what defines the life you have chosen?" [I've added the letters for easier reference.]

The final question #e I can answer with some confidence, what defines a life, whether chosen or fallen into,
Is always the same it seems: it's action, the practices of everyday life, movement, activity.
All the talk and hyperbole, all the promises and the efforts, all the intentions and the apologies,
And finally, all the ideals and the general wishes or desires — none of it means more than a passing comment in a dark bar.
In the end it is part of a failed seduction. In the middle and the beginning, too, it's nearly meaningless, however, we can more easily kid ourselves, succumb to an ideology that allows us to remain productive.
In the end, after all is said and done: It is only the book that is published, printed, or passed around and read at least, is the book that counts. All the ideas for other books, all the drafts (in the mind) and sketchy notes, disorganized notes don't count.
The “Other” ideal profession doesn't count, only the one you actually did. Me, professor, modern Korean literature, poetry, aesthetic theory. Like it or not, that's what defines me, it's where I've come. It’s what I DO. Most simply put, I can't help but think more and more surely over recent years and especially now, that only what one does is what defines one's life.

As a brief interjection, these questions have all been covered on the blog before. In fact, they're nearly the primary philosophical or psychological reason for starting, for figuring it out. That said, I'm glad they're raised again since revisiting them now and then is always a good idea. Too, things change quickly in the Big Casino.
The roll of the dice, the hand you have been dealt...
(And too, also, it's good to have comments to engage with now and then on the blog.)

Question #d is, to put it rather directly, not relevant. Not anymore,
not to me during this period; the knowledge of a foreshortened life.
The meaning of all activity has radically changed for me since I was introduced to terminal cancer, except to the extent that I think of the act and action as described in the paragraph above.
To ask what "I" would do "regardless" (#c and #d) of this situation means to ignore this situation;
One would have to confront it ‘head on’ and then decide to live in defiance
of its reality.
I think that's somewhat counterproductive, especially considering the numerous epiphanies the experience affords.
So much new insight to be had from the “2x4-across-the-head” nature and thud of this new knowledge;
That not only am I mortal (of course) but that my mortality has been radically foreshortened into a number of months.
I'm supposed to be able to count them on both hands, if I’m lucky.
(The timeline now, based on admittedly less than ideal statistical averages, in fact puts down the number of months like this.) Finally and practically, I probably would not be concerned with writing a memoir currently without the news.
Life's obligations would push all that aside.

I suppose the latter two questions addressed would be quite on target for someone at home with eternal recurrence, someone unquestionably not possessed by the notion of "the grass is greener," someone who had made all the "perfect" life choices and was either in unquestionable love with her work or independently wealthy. Wouldn't it be nice — sorry, not be sarcastic toward anyone who's so comfortable in their skin (and / or loaded), it's just never been me.

On #b, looks like I screwed up my numbering.

On #a, I wonder the same frequently: do they need to be asked? The facile Socratic retort doesn't apply I think; and yet if there is ever a time to do perhaps this precisely is the time . . .?
One thing for sure, and no one every said I wasn't picky about language, but the logic of "at this moment"
Does miss the primary fact of what it means to be confronted "prematurely" with death.
The Moment becomes This one, for better or worse.
The next moment may never come.

And how can I resist the return to aleatory Marxism, above, to note again that
"The lonely moment of the last instance never comes"?
Perhaps it's time for me to reevaluate that proposition considering my new context . . .

Posted by Mr. Jones at 7:15 PM

8:25 PM, July 15, 2006

Sunday, March 29, 2009

Words From A Friend Who Watched his Best Friend Die from Pancreatic Cancer

Reposted from Scott's original Post.

A Guest Blog by Frank Chiarella,
One of Scott's dearest friends, and certainly one of mine.
Always and Forever, Frank, I love you.
You offered and Gave Scott unconditional love and Friendship
from the time you met him until he died.

You also provided my Mom and I--
A feeling of peace and safety.  I am so sorry about the recent death of your father.

You hold a special place in my heart--
Always Have and always will.

Sheri



Tuesday, August 22, 2006
8.22.06, Guest Blog. Melancholy and Mystery of Family - A Salt Lake Journey by FGC

[Hey. Here's going to be a Guest Blog from Frank, from the Utah trip last week, a few days old but it's the process of digesting and the digest of processing that was required. Frank also gave it to me two days ago and the remainder is my process of putting off a bit, as is my wont. Today's Franky Scale is an 8, physically pretty good, emotionally very good, a visit from the Disenchanted Princess begins. Also, Mme X had a momentous day that I'm happy about and glad to share part of, so these things add up. Huge congrats to you X. Now, I'm just going to check some edits on the post and will be back with it shortly, tonight. I'll leave this up for most of tomorrow, and if I come with a post of substance I'll put it up at night. Peace.]

Guest Blog:

The Melancholy and Mystery of Family – A Salt Lake Journey.

Traveling across the country to visit a dying friend sucks. Never mind the crowds, crying babies, shoe removal and metal objects at the security points. It’s the anxiety of seeing your dying friend and the fact that you are fucking helpless to fix him. My visit with Mr. Jones was not my last precious moments with him but it crosses your mind. Is this the last time?

My visit with Mr. Jones and his family was bittersweet. When it comes to talking about families and the nuisances between all the players –well…. People in glasses houses, if you catch my drift. Three older sisters, a saint of a mother, a nonexistent father, partners, nephews, beautiful babies, the best fucking carrot cake I still think about, and the ubiquitous drama that exists between all families. A friend once told me spending time with families is like being around fish. After three days they start to stink. Amazingly,
It was five days and the fish remained edible.

We all cope with loss differently. I tend to cry a lot. I think about the living Scott and I have shared and put the impending death of my friend out of my mind until we started to talk about what to leave behind and executing a will. Then it hits you. That is living in the now, the harsh reality of losing a loved one, family or friend. It’s reality punching you in the Adam's apple, you can’t talk or even breathe…. So you just listen. Listen to your friend – Always.

The drama started before I even arrived at Sheri and Stepheni’s. The details are hard to grasp – almost unbelievable, and you wonder what the fuck was the person thinking. So I listened and listened more, digesting the events of earlier that day that I wasn’t around to see. A conflict of sorts between Mr. J and someone close to him. We all cope differently – Right?
Mr. Jones manned up and settled that one.

I spent hours with Sheri and Steph, and there was great pain in that too, the impending unbearable loss of a brother who may be put on a pedestal but I have to say… rightly so. I stood under a full moon with a grieving sister who no doubt loves her brother and we tried to make sense of the senseless.

I visited Stepheni at her office to steal her wheels and met her coworkers,
Who all knew Mr. Jones from this blog. The palpable concern and genuine emotion from all of them was there too; more coping skills and support from distantly related, somewhat anonymous blog readers, who were in the midst of a dying cyber celebrity.
Greetings and gratitude to you guys at the Data Center from Mr. McMahon,
(ask Steph to explain that one).

The big Sunday family get together was marred somewhat by the lack of some family not posting, showing up, on what will most likely be the last time you will all be together…at least with Scott in SLC. I can’t remember the excuse given for why “they” did not come, that is something they will have to live with.
Sue and Susan were fantastic hosts and coping skills were again ever present-- with good food, conversation, and stories; and for the few times when the harsh reality of Mr. Jones’s condition slipped in, I was aided with help from my “nurse” who made the name “Collins” proud.
To all Scott’s nieces and nephews you were huge to come and show your uncle how much you care. In the end it is your family that will always come through. After the party, Mr. J and I paid our respects to Daniel at his grave and he reflected on his own loss, losing Daniel. The mystery of his nephew’s life and death still haunts him. The sun began to fall and cast long shadows on the tombstones as we left, That moment will remain with me forever.

Finally, how will I ever forget looking into the eyes of a grieving mother struggling with the loss of her only son? Nadine, you will always be in my heart. If the miracle you want happens I will sign up with Mr. Smith. Your bran muffins and carrot cake are made with huge love, and as I walked by the pan of carrot cake and stole another fraction of your cake, each time I realized food is yet another coping program. It is also comforting, knowing it was made by you with love. Nadine, I love you for your honesty and admire your faith.
More importantly, thank you for giving me the pleasure of knowing your son.
I hope to one day share all your infinite wisdom with my own family, along with my many memories of your son.

Sheri and Steph* – thank you for your hospitality again – I love you both!
Mr. Jones….. I am always listening. NO pain please! Do what ever it takes….but please…no pain for you.

FGC

Posted by Mr. Jones at 10:33 PM



2 COMMENTS:

Slarry said...
Dear Mr. Frank:

I am a grieving sister and you, the loyal and ultimate ( grieving) friend. We were as one, under the full moon that night; our tears flowing freely, taking solace in each other’s company. Completely unified in the knowledge, that he, Mr. Jones, is unique in all the world. The thought of him not being available to learn, love and laugh with, the loss of Scott--- the most unbearable pain we could imagine. 

You are like my “other brother”--
such fine and similar characteristics; characteristics and gifts that Mr. Jones has always freely, unconditionally provided and offered me: feelings of safety, a sense of calm and stability, keeping me grounded and the warmth and comfort that can come, when one feels understood by a sibling and a loyal friend. I thank both you and Scott for that-- for years of making me feel understood and loved.

What a gift you are ... such joy, comfort and renewed strength you brought with you from New York, showering it on every one of us. For Steph and I, you truly are our favorite. Not only a term of endearment that we have always said concerning you; you are the real deal, our dear, dear friend, and for me personally, like a second brother. Thank you for that. We love you more than we can articulate, probably more than you know.

Your genuine attentiveness, concern and admiration towards our Mother, probably added years to her life. I want to thank you for that and more. Sometimes the one’s who deserve our admiration the most, the people who teach and love us unconditionally, get thanked less often. Thank you for appreciating and enjoying Scott’s Mom, my Mom, as we do. She is a Saint and does make the best Bran muffins. But you also scored a full pan of carrot cake as well. : ) That is huge, my friend.

Other than mine and Steph’s love and gratitude for you and how you have helped us through many emotional and difficult moments, I mostly want to thank you and acknowledge the great friendship you and Scott share. It is a thing of sheer beauty-- and helps this grieving sister, feel a little less anxious about my brother’s impending death. 

I try not to think about it-- try and stay present in the here and now, but the fact remains that my favorite person is suffering unimaginable pain and having his beautiful life, his beautiful mind cut far too short. This is where the senselessness comes, my trying to understand and believe that this is really happening. And it does bring with it questions about the meaning and purpose of life--- why Scott? Why a terminal cancer? He is the healthiest man I know. And especially, why my favorite person, the one I lean on and learn from the most? The one person in our family, other than our Mother, who has the most to offer this world.
I will never understand.

And to my brother: reading, hearing about and observing, at times, your level of discomfort, anguish and pain, is so harsh and unbearable. I hate the pain. I hate that you are suffering and that there is not one stinking thing I can do about it. I can’t fix it. But I am here and I can listen, always.

Thank you Mr. Frank for writing your third guest blog. For stepping up and having the courage to tell it like it is. The “no shows,” the absent and anonymous father--- but also, and most importantly, appreciating the greatness and unique impact that my brother has on others. Also, for the perfect example and a testament to true friendship. You are a class act, my friend. Selfless, and darn influential as well. You too, leaving your mark- imprints in the hearts of many.

You are huge Franky and we love you. Can’t wait to see you again.
This is not good-bye. My plan is to be wherever my brother is. So I will hook up with you there soon. Hopefully, there will be a hot tub for you to splash around in. I’ll try not to peek. : )

 Big, big love to my brother. And to Ms. X, I congratulate and celebrate you too.
Scott, you have some great and supportive friends. So loving, so loyal, so cool. But really, how could one not be drawn to you?
Don’t worry-- I won’t do the pedestal thing. It is just that I love and care for you so much and for so many reasons. You have been an unequalled gift in my life, equally as long. You remain so, and always and forever, will be my most precious. 


Thank you again, franky. And love you most and infinitely my brother.

 xo, Sheri


Give Gill, the Princess and Ted a hug for me.

8:28 AM, August 23, 2006
34DD said...
Wow! - it's hard to top that comment so I won't dare try. I'm just glad that Francis was able to write down his thoughts about the trip to see Mr. J - the stories have been spilling out all week. Thanks to S & S for taking such great care of my boy & your boy & to your mom who kept them well fed! Everyone needs a little comfort food now and then. 

Mr Jonsey - I'm psyched that yesterday was an 8. I hope today is an 11. No more pain. Please tell Miss K we said HEEEEYYYYY and give her a squeeze for me (wink wink :) oxoxoxo lot's of love and good thoughts from NY.


ADDENDUM: Sir Frank, thank you for this and many, many other acts of unconditional loveand Grace. Scott loved you so much- but you already know that. Please know that we do too. Hope this finds you well.  
Forever & Always, you truly are our FAVORITE! loves, Sheri and Steph*



* deleted. 03/28/09

Tuesday, January 06, 2009

Happy Birthday, Mr. Monkey Man!!!





January 5, 2009

Yes, another few words about Scott.
It is, or would have been, his 41st birthday tomorrow!
January 6, 1968

That's HUGE!
Borrowing from his original post,
YOU'LL HAVE TO LOAN ME PAIN--
Wednesday, May 17, 2006, with a few memories and recollections
about Scott and our Mom, Nadine, who we also lost to Cancer.
You are both loved. You are both missed.
I will love both of you forever and miss you infinitely as long.

Loves,

Sheri


You'll Have To Loan Me Pain" - life, death, love

A gentle memory and recollection, borrowed from Scott's blog.
--sas


Wednesday, May 17, 2006

5.17.06, You'll Have to Loan Me Pain...

Here is the following poem I promised, the poem following the
Creeley one (from last post)--in my convoluted mind.

From e.e. cummings' book No Thanks. Wonderfully titled, cummings being too
much before his time had the manuscript rejected
by Farrar & Rinehart, Simon & Schuster, ... Knopf, Dutton, Harper's, Scribner's,
and many, many others.

So the title is "No Thanks" and you open the books to see
"To: Farrar & Rinehart,..." and all the other myopic editors and their employers.

The poem here, "66" it might be called, or first lined
"death (having lost) put on his universe" staggers me; and I suppose some who choose to do so can read it as a wager,
with death and love, and opening with the punch line.
(This was the primary poem that inspired me in eulogizing
my nephew Daniel Ray Luna who, talk about dumb luck, died before he started at 23--
just about one year ago. An aside.)

If it's a wager, here metaphorically death loses. In our waking wish fulfillment.


66

death(having lost)put on his universe
and yawned:it looks like rain
(they've played for timelessness
with chips of when)
that's yours;i guess
you'll have to loan me pain
to take the hearse,
see you again.

Love (having found) would up such pretty toys
as themselves could not know:
the earth tinily whirls;
while daisies grow
(and boys and girls
have whispered thus and so)
and boys with girls
to bed will go,

(Complete Poems, 1904-1962)


That, my friends, is a poem! Love and death in the lost and found;
or, the wager between the two; what boys and girls will do, though "boys" and "girls"
must be taken openly, inclusively here.
(We'd lose half my family if not... ;-) )

Enough from me. I'm off to lie on the table, and slide up and down--
"Breath in" [PAUSE]....."Hold your breath"...[PAUSE] ...
"You may now let out your breath"....[PAUSE, NOISE] "Breath in"..[PAUSE] ...
"Hold your breath"...., belly filled with two quarts of the barium juice.
And for those who haven't done it,

don't believe the comments, the barium drink is pretty much as good/bad tasting
as pep-to or mylanta or any other chalky drink.

It's a cake walk.

Too early to evaluate the day, but I'll say Franky Scale, 8,
you get at least 8 points just for the cummings' poem.

--- Mr. Jones, aka Scott


It is the beginning of a new year (2009) and a new month
(January) and the Anniversary of Scott’s death, is just over 2 weeks and two years old.
Since that time, other people whom I love and care about, whom we love and care for,
have passed away or had someone dear to them pass away.
Which is to say, we all have experienced sorrow and loss.
We stand as a unified community of feeling and experience.

I didn't use to think about death much; hardly at all.
That ended the day my 23 year old nephew, Dan, was found dead,
for not fully explained reasons, on February 25, 2005.
And so began (at least for me) a number of deaths and losses that continue to haunt me.
Learning to live with the knowledge that the older I become the more people I will lose
and miss (and the increased experiences I will have dealing and coping with death)
and the angst and pain that is sure to follow.
This is demonstrated and expressed, written with such poetic perfection
and insight by the brilliant ee cummings in his poem cited above.

Yes, I ponder more, give pause on how love affects life and death,
how they compare, contrast and intertwine with one another.

At the end of the stanza about death, cummings puts a period (.)
perhaps to symbolize that death is final. The end.
However, he puts a comma at the end of the stanza about love,
hopefully symbolizing that love lives on--
That there is no end.

This is what I believe;
That we continue to love, to live, to ponder and relate to one another,
always. Infinite in its power--love supersedes all.

I have no idea what prompted me to read this particular post from Scott's blog
or remember this particular poem. If Scott was alive, he would be turning
the BIG 41 tomorrow, January 6.
Wow, that would have been one hell of a party and celebration.
But instead of focusing and reflecting on my gratiude for his birth and life,
I am reminded that Scott’s funeral took place two years ago, on January 6, 2006,
on his birthday. *Huge Sigh*

I spoke that day (poorly, oblivious and shaken)
with our Mom, who 2 months earlier was helping Scott move into a new apartment,
was dying at the Huntsman Cancer Center, too weak to attend her son’s funeral.
She was heartbroken. She died seven days after Scott’s funeral, January 13, 2007.
That, I’m sure, is what brought me to his blog and this particular post today.


Honestly, the shock and pain of losing my two favorite people so close together
knocked me over like the thud of a giant 4” x 4”. It was debilitating and unreal.

I have been thinking of Scott quite a bit lately, he’s in my dreams and he’s here while I’m awake.
I miss him. I miss his beautiful mind. I miss the conversations
that prompt and beg me to think--
I miss him being around; always available to laugh with, to read something new he wrote, and more,
the constancy and comfort he brought to my life.

And my Mom--how does one express and articulate the loss of your Mother?
She laughed and cried with me. While I was growing up, she read to me every single night before
I went to sleep. She was an incredible woman- she not only taught me about life,
she was my life.
Anything really worthwhile about me comes from the influence and love
from my Mother and brother. Scott and Nade. Two Little jewels.

So, for whatever reason, I am passing this along for anyone who may be feeling similarly,
whether about Scott or anyone they miss (have loved and lost).
Perhaps this particular post struck me because Scott sounds so alive; vibrant, excited,
brimming with ideas and passion! I can see and hear him saying,
“That my friends is a poem!” Grinning from ear to ear.
Even, and in spite of, facing death, Scott came to his crossroads,
his challenge, and jumped full in!
Continuing to live as bravely, as gracefully, and as determined as before.

Maybe, too, because I am facing my own crossroads; my own "leap of faith,"
during a time in my life when I’m experiencing changes, and another type of loss.
Pathetic and puny in comparison to what Scott faced,
but real and challenging, nonetheless.

Life and time are precious and priceless. I am grateful for and indebted to each of you.
You are a gift I will always be thankful for. I truly hope this finds all of you well.

Always,

Sheri

The following is a poem I wrote.
I'm sharing it, knowing that most, if not all of you write
far superior to me.
But hey, I enjoy it and I'm learning as I write more.



Pipe Dreams

Concrete blogs, gods, and dilemmas


everyday complexities
that foster, breed chaos
and confusion.
(they) are not straight, forward
linear.
emerging
responds to fused relations,
dilemmas, of choice-
or toleration
then of pain.

it is then, when,
stillness strains, with questions hushed,
the imagination stutters,
narrowing the creation, the poetic-
the pipe dream of future, nullified,
then dies.

prudery attachments,
academic, robotic responses (taken to heart)
“don’t take [ it ] so hard ... “
these sentiments echoing
in my brain,
bang against my ears,
stab and creep into my tatered heart.
creating fragments, tiny pieces, “of what?”
whatever....
the arteries have hardened, (like concrete)
cracks, fissures, splitting-
upon the shaken ground.

“no, nothing is simple .... “
the humanness of dilemmas, connecting,
of feeling
lie beyond that which is attainable,
even in fantasy
even in thought.

there is no (one) to embrace
and everything (is) more shallow,
empty and complex
than ever before.

‘no,’ like him, "i cannot shake this world .... “


-- Sheri Swaner

"So, I get myself up, brush myself off- and start all over again."

Happy Birthday, Monkey Boy!


Between Here And Gone by Mary Chapin Carpenter


All poems, posts, blogs, music are regulated
by copyright law.

Sunday, December 14, 2008

Life: The Crash Course Version








[My brother passed away from Pancreatic Cancer almost 2 years ago on December 20th. 2006
He was 38 years old. This is an entry from my personal journal]

LIFE: The Crash Course Version


"death and dying are the easy parts, it's life without someone that's
hard, the harshest... and as bad as this feels now, it is not the worst part..."


Saturday  April 29, 2006

JOURNAL ENTRY #6:  ORAL CHEMOTHERAPY


Some bewildered musings and deeper thoughts, one Saturday morning with my brother:

My brother Scott has developed his own scale of pain in a blog he
created. It differentiates between physical and emotional pain.
Consequentially, there are always two numbers-one for how he is
feeling emotionally, the second indicates how painful the
physical, the tangible pain is from the cancer that disrupts
and poisons his body daily...how much he hurts.

Today I'm writing about my own pain, as one who loves and cares for
him. How my brother's pain, anguish and befuddlement, as the impending end of his life draws ever near, affects me.
And yes, it is painful-- oh, so very much and in so many ways.

As of yet I have found no scale worthy enough, no barometer
or gauge I can go to or look at, that adequately describes the pain I am feeling.
I don't think I even want to. It makes it too real. Yet no matter
how hard I try to distract myself, the agony is ever present. It
follows and surrounds me like a dark ominous cloud.

We started the day with our new morning ritual;  a cup of freshly
brewed coffee in hand with me asking what he would like for breakfast.
Food is a sore subject--he has no taste buds and no appetite. So I
am learning to approach the topic delicately, respectfully, though at
times carelessly, in avoidance--as if his diet is of no consequence.
However, today was different.  He didn't respond in his usual way;
"Sheri, I've told you...I don't care what I eat anymore...if it
tastes good or not, even something I used to enjoy...Let me just get
something myself. "  Today, instead, he said, "Oh, I can't eat
anything yet.  Today is an oral chemo day.  I have to wait 20 more
minutes until I can take the chemo pills, then I can eat a little
something ... but then, yeah, something for breakfast would be great."

I was fine for a moment. Then this awkward silence descended on me.
Both of us realizing, simultaneously, that this one paltry response,
actually spoke volumes.  We never used to talk about cancer or
chemotherapy, but more significantly, we never spoke about HIS having
Cancer, let alone the significance of taking chemotherapy pills.  And
it is not even a pill that will cure him.  It is only a pill that may
prolong his life, hopefully, a few more months, if we are lucky.

Then my brother asked me, half joking, half to break the unbearable
silence, if it bothered me if he took "the pills"  in front of me?
Bothered me?  I could feel the tears begin to well up, my barrier of
courage cracking as I began to weep. I cannot recall my answer, all
of the words I spoke.  Only that they were feeble, at best, compared to
all that I was feeling. I answered, though hardly discernible, that
"yes, it actually bothers me quite a bit ... not that you are doing
it in front of me...just the mere fact that you have to take them at
all ...  "   "It just makes me so sad...so mad,"  and the tears
freely rolled down my face, like waves crashing onto the shore.

I discovered this poem as I was searching for an Anne Morrow
Lindbergh quote.  It attempts to express how and what I was feeling
during my Saturday morning session with my brother.


Fairy tales For My Brother


It seems wherever I go,
People come into my life and go out.
Touching me where I can feel,
Then leaving only a memory
Like the gossamer fairy tales of children easily forgotten.
And I wasn't through knowing them.

How do I know
Whom I am seeing for the last time?
How do you halt your life
To gather and keep fairy tales from losing their magic?

So come.
Brush against the walls of my life
And stay long enough for us to know each other,
Even though you know we will have to part some time.
And we both know the longer you stay,
The more I will want you back when you have gone.

But come anyway.
For fairy tales are the happiest stories we know,
And great books are made of little chapters.
-anonymous

This is my journal entry for today. The significance of watching my
younger and by all accounts, except for his having terminal pancreatic cancer,
healthier brother ingest oral chemotherapy, oral toxic poison, to steal a bit more life.

This is a journey, an experience that no one prepares you for.  There
is no rule book to guide me through my anguish and sorrow.  And so I
depend on the strength and comfort of my friends, partner, family  and
loved ones, to help get me though this.  Not for myself-- but so that
I can be of use to him as he becomes weaker, as I know he will.

What makes this so uncanny and peculiar is, I still find myself relying
and depend on him to assist me with the answers on “how to cope” and as a source of strength and balance,
which is one of the many roles he plays in my life.
Is this thoughtless, selfish? If it is, it certainly isn’t intentional.
Just what I've grown to expect; his wisdom and perspective,
in a life that doesn't always make sense to me.
I want and need to be there, for him.
Pretending this isn’t happening, behaving as if I've ever experienced anything even remotely like this,
is silly and disingenuous. Again, balance, I need to discover my own.
And yes, this scares me and I tremble at the thought.
Another reason for confronting and learning about what it is, what it will be like?
The process of losing my brother.

I will follow his lead.

Something else, another observation...As ill and weak as he is, knowing he will die soon,
and all of the thoughts and fears that come with that knowledge,
he still, as always, tries to shield and protect me from what he knows will be
my sorrow and anguish, the ominous hole of loss that his passing will bring.
The void that will become a part of my waking life. I can't even begin to imagine.

Scott has not lost, and will never lose his "magic."
His importance in my life, if anything, is even more penetrating, alive and prevalent.
The thought of losing him is the most unbearable pain I can think of.

But, "I will come anyway" and join him in his fight and struggle in
trying to make some sense of this most senseless and crude diagnosis
and disease. He is fighting for his life. I am fighting for his life--and hoping for a miracle.
 
As I continue to love, enjoy, learn from and honor him,
I am grateful for every moment and experience we have shared. Every thought
and stolen memory I can, and will, continue to share and remember, knowing
I was blessed with the most wondrous brother; one who amazes and overwhelms me every day.

My heart breaks a little more each day. With the swallow of a pill, a groan, a sigh,
or the pensive look of pain that hasn’t left his face since his diagnosis--
he continues and remains determined, always.
Productive, beautiful and thoughtful, constantly.

His is an amazing life. And yes, I stand amazed.

I love you, my brother.
"This is not good-bye"

Loves,

Sheri

Tuesday, October 14, 2008

The Life and Death, or Rather the Love and Death of Daniel Ray Luna (1981-2005)



This is the Eulogy Scott gave at our oldest nephews Funeral, Daniel Luna.
Daniel Ray Swaner Luna was a mere 23 years old at the time of his death.
It was unexpected, harsh, and difficult on our entire family.
Most especially, my sister, Sue and Dan's siblings.
Other than his brothers Scott was not only Dan's uncle, but his best friend and mentor.

Scott was diagnosed with Stage IV Terminal Pancreatic Cancer 13 months after eulogizing Dan.
I can only hope that they are somewhere together,
with my Mom, listening and playing Jazz, reading and writing poems-
with Scott on the Sax and Dan on the piano or guitar.

Scott's mentions Daniel in this blog on several occasions-
Dedicated at least two full posts and wrote a poem titled, The Premonition.

You can look the post up in the "search" available at the top of this post-
and hopefully, soon, I will become more fluent in the blogging process
and be able to link the post and poem here.

“The Life and Death, or Rather the Love and Death
of Daniel Ray Luna (1981-2005)—In Memoriam”

2 March 2005, Salt Lake City, Utah

How do we begin? How do we remember Daniel Ray Luna?
What do we do with our love for him now that he’s gone?

My mother told me something growing up, an aphorism, one that I always took as part of her personal store of wisdom.
Of difficult times she would say: “If it doesn’t kill us, it will only make us stronger.”
It was only much later I learned that someone before her had also said this—Nietzsche.
It made for a curious connection and it was burned into my memory.
Now another line from Nietzsche comes to mind: “—pain is the most powerful aid to mnemonics”
(On the Genealogy of Morals 61). Not that we would otherwise forget. . .

In trying to make sense of this, of death and trauma, of frustrated youth
and one amazing soul being torn from what seemed to be the whole fabric of life—
all this in Daniel’s passing—I have been looking more carefully at death to understand that fabric,
now with a gaping hole that surrounds me. Look around. It surrounds all of us.
Daniel’s departure left this hole for everyone who knew him.
Daniel’s very existence showed us that his was an amazing soul—he would either shine or extinguish,
but would not live, or could not live--like so many of us do--in the spaces in-between.
His was not a common soul. When he smiled you sensed this: he either smiled as if he knew something you didn’t,
or he laughed in complete transparency.

Since the middle of Friday night, when too many of us were ripped from an ignorant sleep,
I’ve been searching for “death.” What now? What next?
The more I looked around for “death” the more I found that another term, another experience,
always seemed to occupy the same page:
wherever I found “death” I seemed to find “love,” someone’s love.
This poem is one example:

“42. love is more thicker than forget”

love is more thicker than forget
more thinner than recall
more seldom than a wave is wet
more frequent than to fail

it is most mad and moonly
and less it shall unbe
than all the sea which only
is deeper than the sea

love is less always than to win
less never than alive
less bigger than the least begin
less littler than forgive

it is most sane and sunly
and more it cannot die
than all the sky which only
is higher than the sky (CP 530)

So there we have it, from the poet e.e. cummings: we have love and memory,
we have love over death, and we have love above all else.
Is there anything else we see with more brilliant clarity at this moment?
“That which takes place out of love takes place beyond good and evil” (Nietzsche, Beyond Good and Evil 103).
In love, in acts of love, in acts of loving memory, we are not working in conflict with someone else’s version of right
and wrong.
Today in memoriam, we are not here as believers and non-believers, as faithful and faithless,
we are here as family. The family first, the family beyond forgetting, the family of Daniel Ray.

When we think of death we are most commonly strictured in our minds by what we assume is the usual pairing of experiences and feelings—in other words, the pair, Life and Death.
This, however, begs the question: should we think of these as a natural pair?
The answer is no: rather, it should be thought as Love and Death.
Because life and death are not opposites, they are the same.
Love and death are opposed, and yet complimentary.
It is through love that death acquires meaning, it is through love that death becomes more than Nothingness with a capital “N.”
I used to know a poet who would say of poetry, and therefore of life,
that “Fear of loss is every lover’s fear.”
If death is the personification of loss, then the lover, is left alone by death,
alone to live on until released from, or reconstituted by that loss.

To state it differently, without love death means nothing, it is scientific, numerical, and perfunctory.
To say this is to disagree with e.e. cummings, elsewhere, where he writes,
“And death i think is no parentheses.”
That is the final line in one of his poems, and coupled with the line before it, we see a fuller picture:

for life’s not a paragraph
And death i think is no parentheses (CP 291).

Life, of course, as Daniel has reminded us, it simply dies: death, of course,
is already dead, leaving us with love alone.
Love alone survives.
Love alone resists.
To put it in the harshest possible light, love alone is too goddam stubborn
or stupid to know any better.
So we are left here, after Dan, either too ignorant or too intransigent, standing gaping around this frightful
rent in life’s fabric.
The gaping hole in meaning were Daniel used to stand.

How long will the edge of this fabric support us? We wonder while we weep and gaze into that oblivion.
On this side of death we are only left to remember—
with pain as the most powerful reminder; we are left to be chastened, at least a little;
and we are left to be admonished, somehow, next time, to do better.

Again, from e.e. cummings:

“dying is fine)but Death”

dying is fine)but Death

oh
baby
i

wouldn’t like

Death if Death
were
good:for

when (instead of stopping to think)you

begin to feel of it,dying
‘s miraculous
why?be

cause dying is

perfectly natural;perfectly
putting
it mildly lively(but

Death

is strictly
scientific
& artificial &

evil & legal)

we thank thee god
almighty for dying

(forgive us,o life!the sin of Death (CP 604)



And finally this, to Daniel,
whose flame burned hot before flickering and being snuffed:

death (having lost) put on his universe
and yawned:it looks like rain
(they’ve played for timelessness
with chips of when)
that’s yours;i guess
you’ll have to loan me pain
to take the hearse,
see you again. (CP 451)©©©

Scott H Swaner




© Scott H Swaner
used with permission
from the Scott H Swaner foundation fund.

Sunday, January 13, 2008

In Memory Of Nadine Swaner, our Mom



ONE YEAR AGO TODAY
For our beloved Mother:

NADINE COX SWANER

September 13, 1927 ---- January 13, 2006

Saturday, January 13, 2007

Dear family, friends and loved ones,
Today, at 3:25 pm, our wonderful, beautiful Mother, Wife, Grandmother, Aunt and friend,
Nadine Cox Swaner, died at the Huntsman Cancer Institute,
surrounded by her family.

It was only one week ago that we were together with many of you,
as we grieved, honored and paid tribute to our brother, her son, Scott.
They were such dear and tender friends and so close.
Their bond and love for one another was deeper and stronger than anyone could imagine.
As tragic as the loss is that we feel today, we are grateful knowing they are not alone.
But together; able to enjoy, laugh and learn from each other, as they always have.
They are both now free from pain. This brings us some comfort.

The loss of our Mom, the loss of a Mother is especially difficult.
She has loved, protected and taught us so, so much.
She is unique in all the world. We count ourselves particularly lucky
and blessed to have been hers.

She is grand, eloquent, beautiful, selfless and long suffering.
She will be remembered most for her graciousness, generosity,
unconditional and boundless love and strength. She lived a determined and purposeful life.
She is the strongest woman we know. Her faith and love for her Heavenly Father is unparalleled.

A gentle woman, with a twinkle in her eyes and a smile that could light up every room
and brighten any heart. She brightened all of ours.

We love you Mom! Infinitely and Eternally.
We will always miss you more than you will ever know.
Our hearts are broken and we are so, so sad.
No one, and nothing prepares one adequately for the loss, the death of your Mother.
We promise that we will love and cling to one another, forever and always
and think of you every minute of every day
and be grateful for every stolen moment and memory we shared with you.

Loves,

Sue, Sheri, Stacey ( and Scott )

We know that for many of you, our Mom’s death comes as a shock.
Many of you were not aware that she was ill.
Please feel free to contact us and we will help as best we can.

Sue Swaner: albeez_90@hotmail.com
Sheri Swaner: sschapin50@gmail.com
Stacey Swaner Moore: pancreasboy@comcast.net


A Mother's Love
~
A mother's love determines how
 we love ourselves and others.

There is no sky we'll ever see

Not lit by that first love.
Stripped of love, the universe

Would drive us mad with pain;

But we are born into a world

That greets our cries with joy.
How much I owe you for the kiss

That told me who I was.

The greatest gift--a love of life--
Lay laughing in your eyes.

Because of you my world still has

The soft grace of your smile;

And every wind of fortune bears

The scent of your caress.

Nicholas Gordon

Tuesday, December 11, 2007

Professor Scott

Some photos of Mr. Jones,
his family and friends.





We miss and love you, Mr. Monkey Man !!

A very kind note from Scott's oncologist.

Dear Scott's Family and Friends,

I am thinking of Scott today, as a year from his passing races up so quickly.
My thoughts are warm and positive about Scott. I remember him very fondly.
I of course feel regrets and frustrations about the horrible thing that cancer is,
and I wish that I could have done better for Scott. I hope you all are holding up ok.
And that you are living fully and with joy, as Scott would want, and as life demands.

My very best to you. My very best to Scott.

Sincerely
Sam Whiting MD



Dear Dr. Whiting,

Thank you for contacting us.
What an unexpected pleasure. We remain, as ever,
so grateful for the loving care you provided Scott.
He felt safe and confident with you and your vast skills-
and for that, and all that you did for him
we are forever grateful.

Our best to you and your family.

Saturday, December 01, 2007

BITS OF GRACE & GRATITUDE





More and more, I am discovering that I am not the only one
whose life Scott touched.
Thank you,  for your kind letters, emails, and for "checking in,"
especially this first Holiday Season of loss.
It means so, so much.
Please feel free to write, comment- whatever.
Somehow, I think your voice and words will find their way
to him.
With love,
Sheri and family
sschapin50@gmail.com
<

posted by: slarry

a guest and sibling of mr. jones

Tuesday, October 02, 2007

Scott H Swaner



Scott H. Swaner

Dr. Scott H Swaner 1968 ~ 2006.
To our friends and loved ones; Our son, brother, uncle, friend, colleague and loved one, Scott Swaner, died December 20th 2006 in Seattle, Washington of Pancreatic Cancer. He was 38 years old. At the time of his death, Scott was an Assistant Professor of Korean Literature and Poetry at the University of Washington in Seattle. After successfully completing an LDS mission (the church of his youth) in Seoul, Korea, Scott's ongoing love affair with all things Korean began. Quoting his mentor and dear friend, Dr. David McCann of Harvard University, "Scott was the first student ever admitted in the Ph.D. program to study Korean Literature at Harvard University. He was a wonderful student, passionate about literature, the serious study and performance of it, and above all else, its relationship to the lives of the Korean people who made and read it. Scott's essay for Harvard's Library and exhibit of works remains an inspiration and tool for Professors and students alike." Scott was born in Northridge, California January 6th, 1968. He grew up in Castro Valley, California until the family moved to Salt Lake City in 1978. Scott graduated from East High School, where he formed many lifelong friendships. Friends who we as a family honor and remember today. Even in high school, Scott was a devoted writer and lover of learning. It was at East High where Scott also developed his love for music, Vespas, soccer and Southern Utah.
Scott earned his B.A. in English Literature from the University of Utah and his M.A. in Korean Literature from Cornell University in Ithaca, New York. Scott was also a a recipient of a Daesan Foundation Grant for translating Korean Poetry and was also awarded a Fulbright Scholarship. Scott earned his Ph.D. in Modern Korean Literature from Harvard University. Upon graduation, Scott was awarded the position of Assistant Professor of Korean at the University of Washington where he taught for three years.

Scott was first and foremost a teacher and a writer, a lover of words with a gift for translating poetry, teaching and deeply understanding critical theories and had a great passion for philosophy. He had a huge impact on his students and left an indelible mark with his teaching, poetry, essays and thoughts.
We were stunned and grief stricken at his diagnosis of Pancreatic Cancer in March, nine months ago. Scott began a website www.donotgogentle.blogspot.com upon learning of his diagnosis.
In it, he continued to teach and educate others about his experience with the knowledge of a foreshortened life, his symptoms and cutting edge treatments of Pancreatic Cancer.
Our family wishes to thank Dr. Sam Whiting and his staff of the SCCA for their consistent, empathetic and supportive care of Scott throughout his illness. We are forever indebted to Dr. Whiting for the lengths he took in helping prolong Scott's life, allowing him to linger here with us just a little longer.
Pancreatic Cancer is intrusive, invasive, senseless, insipid and in Scott's case, terminal. It robbed us of Scott and has left a huge void in the lives of those he leaves behind and all those who love him. Scott left this world much the same way he entered it; with light and life. He fought and raged against cancer with immense courage and bravery. His strength of mind continually amazed us. He did not "go gentle into that good night" (Dylan Thomas) even until his last hours. With his beautiful mind intact and even more expansive heart, he died surrounded by love.
"NOT ONLY IS ANOTHER WORLD POSSIBLE, HE IS ON HIS WAY. ON A QUIET DAY, ONE CAN STILL HEAR HIS BREATHING." Arundhati Roy

Yes, there is another world, another life and we will always be able to hear his breathing.
We love you Scott. You did more in your 38 years than most do in a lifetime. We are and will forever be grateful to have been blessed with the gift you are and have been in our lives. Love you Infinite Numbers, your family.
Scott is survived by his parents, Dr. Harold and Nadine Swaner, sisters; Sue Swaner (Susan Passino), Sheri Swaner (Stepheni Hutton), Stacey Swaner Moore (Kerry), nephews and nieces, Mike Luna (Whitney), Deborah Luna Swensen (Garth), Matthew Luna, Whitney Moore, Dayne Moore and great nieces Alexandria Swensen and Jasmine Luna, and his constant companions and source of peace, his cats.
Preceded in death by his friend and nephew, Daniel Luna, who passed away almost two years ago suddenly and tragically. The loss of Dan affected Scott and we all continue to morn the loss of him.
This is not goodbye, dear Scott. You will never lose your magic . . . and we promise to take care of our beloved mother.
Special friends: Kim Luu, Gillian Harkins, Frank Chiarella, Ted Mack, Daisy Dailey Scholz and Samuel Straight. Special thanks to Kim, Gillian and Ted, Scott's Seattle family, for your constant love, care and support for Scott.

There will be a memorial service held Saturday, January 6th, at noon at Larkin Mortuary, 260 East South Temple. All friends and family are invited to attend.
There will be another memorial service on Jan. 19th in Seattle, WA. Please consult Scott's family or web site for updated info.
Published in the Salt Lake Tribune on 1/4/2007.
Guest Book • Flowers • Charities


posted:
Tuesday, October 2, 2007
by: Slarry, aka; Sheri Swaner, one of Scott’s sisters
31